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Mental health challenges and digital platform opportunities in patients and families affected by pediatric neuromuscular diseases - experiences from Switzerland.
Gruebner O, van Haasteren A, Hug A, Elayan S, Sykora M, Albanese E, Stettner GM, Waldboth V, Messmer-Khosla S, Enzmann C, Baumann D, von Wyl V, Fadda M, Wolf M, von Rhein M. Gruebner O, et al. Among authors: von rhein m. Digit Health. 2023 Nov 16;9:20552076231213700. doi: 10.1177/20552076231213700. eCollection 2023 Jan-Dec. Digit Health. 2023. PMID: 38025108 Free PMC article. Review.
ORCHID (Outcome Registry for CHIldren with severe congenital heart Disease) a Swiss, nationwide, prospective, population-based, neurodevelopmental paediatric patient registry: framework, regulations and implementation.
Natterer J, Schneider J, Sekarski N, Rathke V, Adams M, Latal B, Borradori-Tolsa BT, Bouhabib M, Fuhrer Kradolfer K, Glöckler M, Hutter D, Kelly J, L'Ebraly C, Pfluger MR, Polito A, von Rhein M, Knirsch W. Natterer J, et al. Among authors: von rhein m. Swiss Med Wkly. 2022 Sep 2;152:w30217. doi: 10.4414/smw.2022.w30217. eCollection 2022 Aug 29. Swiss Med Wkly. 2022. PMID: 36074038 Free article.
The Coping with and Caring for Infants with Special Needs intervention was associated with improved motor development in preterm infants.
Akhbari Ziegler S, von Rhein M, Meichtry A, Wirz M, Hielkema T, Hadders-Algra M; Swiss Neonatal Network & Follow-Up Group. Akhbari Ziegler S, et al. Among authors: von rhein m. Acta Paediatr. 2021 Apr;110(4):1189-1200. doi: 10.1111/apa.15619. Epub 2020 Oct 24. Acta Paediatr. 2021. PMID: 33047325 Free PMC article. Clinical Trial.
32 results