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Recommendations for Improving the Quality of Rare Disease Registries.
Int J Environ Res Public Health. 2018 Aug 3;15(8):1644. doi: 10.3390/ijerph15081644.
Int J Environ Res Public Health. 2018.
PMID: 30081484
Free PMC article.
[Research promotion by a patient organization : The example of PRO RETINA and it's research foundation].
von Gizycki R, Gusseck H, Brunsmann F.
von Gizycki R, et al.
Ophthalmologe. 2020 Aug;117(8):760-764. doi: 10.1007/s00347-019-01024-1. Epub 2019 Dec 17.
Ophthalmologe. 2020.
PMID: 31848680
Review.
German.
Item in Clipboard
Defining Patient Engagement in Research: Results of a Systematic Review and Analysis: Report of the ISPOR Patient-Centered Special Interest Group.
Harrington RL, Hanna ML, Oehrlein EM, Camp R, Wheeler R, Cooblall C, Tesoro T, Scott AM, von Gizycki R, Nguyen F, Hareendran A, Patrick DL, Perfetto EM.
Harrington RL, et al. Among authors: von gizycki r.
Value Health. 2020 Jun;23(6):677-688. doi: 10.1016/j.jval.2020.01.019. Epub 2020 May 23.
Value Health. 2020.
PMID: 32540224
Free article.
Item in Clipboard
[Development of disease-specific patient groups within Pro Retina].
von Gizycki R, Brunsmann F, Rybalko A, Hildebrandt AG, Rüther K.
von Gizycki R, et al.
Ophthalmologe. 2009 Jul;106(7):639-45. doi: 10.1007/s00347-009-1990-5.
Ophthalmologe. 2009.
PMID: 19572133
Review.
German.
Item in Clipboard
[Patient participation in medical care, taking rare retinal degenerations as examples].
Brunsmann F, von Gizycki R, Rybalko A, Hildebrandt AG, Rüther K.
Brunsmann F, et al. Among authors: von gizycki r.
Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz. 2007 Dec;50(12):1494-501. doi: 10.1007/s00103-007-0383-7.
Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz. 2007.
PMID: 18038106
Review.
German.
Item in Clipboard
Acceptability of prenatal diagnosis for retinitis pigmentosa.
Pawlowitzki IH, Rüther K, Brunsmann F, von Gizycki R.
Pawlowitzki IH, et al. Among authors: von gizycki r.
Lancet. 1986 Dec 13;2(8520):1394-5. doi: 10.1016/s0140-6736(86)92033-7.
Lancet. 1986.
PMID: 2878250
No abstract available.
Item in Clipboard
Centre and periphery in the International Scientific Community: Germany, France and Great Britain in the 19th century.
von Gizycki R.
von Gizycki R.
Minerva. 1973;11:474-94. doi: 10.1007/BF01557798.
Minerva. 1973.
PMID: 11609342
No abstract available.
Item in Clipboard
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