de Vries MC - Search Results

1

Parents' Perspectives and Societal Acceptance of Implementation of Newborn Screening for SCID in the Netherlands.

Blom M, Bredius RGM, Jansen ME, Weijman G, Kemper EA, Vermont CL, Hollink IHIM, Dik WA, van Montfrans JM, van Gijn ME, Henriet SS, van Aerde KJ, Koole W, Lankester AC, Dekkers EHBM, Schielen PCJI, de Vries MC, Henneman L, van der Burg M; SONNET-Study Group. Blom M, et al. Among authors: de vries mc. J Clin Immunol. 2021 Jan;41(1):99-108. doi: 10.1007/s10875-020-00886-4. Epub 2020 Oct 18. J Clin Immunol. 2021. PMID: 33070266 Free PMC article.

2

Early diagnosis of ataxia telangiectasia in the neonatal phase: a parents' perspective.

Schoenaker MHD, Blom M, de Vries MC, Weemaes CMR, van der Burg M, Willemsen MAAP. Schoenaker MHD, et al. Among authors: de vries mc. Eur J Pediatr. 2020 Feb;179(2):251-256. doi: 10.1007/s00431-019-03479-5. Epub 2019 Nov 11. Eur J Pediatr. 2020. PMID: 31709473 Free PMC article.

3

Dilemma of Reporting Incidental Findings in Newborn Screening Programs for SCID: Parents' Perspective on Ataxia Telangiectasia.

Blom M, Schoenaker MHD, Hulst M, de Vries MC, Weemaes CMR, Willemsen MAAP, Henneman L, van der Burg M. Blom M, et al. Among authors: de vries mc. Front Immunol. 2019 Nov 6;10:2438. doi: 10.3389/fimmu.2019.02438. eCollection 2019. Front Immunol. 2019. PMID: 31781088 Free PMC article.

4

Parental experiences in end-of-life decision-making in allogeneic pediatric stem cell transplantation: "Have I been a good parent?".

Mekelenkamp H, Lankester AC, Bierings MB, Smiers FJW, de Vries MC, Kars MC. Mekelenkamp H, et al. Among authors: de vries mc. Pediatr Blood Cancer. 2020 May;67(5):e28229. doi: 10.1002/pbc.28229. Epub 2020 Mar 5. Pediatr Blood Cancer. 2020. PMID: 32134215

5

Decision making for hematopoietic stem cell transplantation in pediatric, adolescent, and young adult patients with a hemoglobinopathy-Shared or not?

Mekelenkamp H, Smiers F, Camp N, Stubenrouch F, Lankester A, de Vries M. Mekelenkamp H, et al. Pediatr Blood Cancer. 2021 Sep;68(9):e29099. doi: 10.1002/pbc.29099. Epub 2021 May 18. Pediatr Blood Cancer. 2021. PMID: 34003573

6

How to Facilitate Decision-Making for Hematopoietic Stem Cell Transplantation in Patients With Hemoglobinopathies. The Perspectives of Healthcare Professionals.

Mekelenkamp H, van Zanten H, de Vries M, Lankester A, Smiers F. Mekelenkamp H, et al. Front Pediatr. 2021 Aug 18;9:690309. doi: 10.3389/fped.2021.690309. eCollection 2021. Front Pediatr. 2021. PMID: 34485192 Free PMC article.

7

Hoping for a normal life: Decision-making on hematopoietic stem cell transplantation by patients with a hemoglobinopathy and their caregivers.

Mekelenkamp H, de Vries M, Saalmink I, Nur E, Kerkhoffs JL, Heijboer H, Cnossen M, Lankester A, Smiers F; SCORE consortium. Mekelenkamp H, et al. Pediatr Blood Cancer. 2024 Mar;71(3):e30808. doi: 10.1002/pbc.30808. Epub 2023 Dec 11. Pediatr Blood Cancer. 2024. PMID: 38082534

8

Participation in a single-blinded pediatric therapeutic strategy study for juvenile idiopathic arthritis: are parents and patient-participants in equipoise?

Hissink Muller PCE, Yildiz B, Allaart CF, Brinkman DMC, van Rossum M, van Suijlekom-Smit LWA, van den Berg JM, Ten Cate R, de Vries MC. Hissink Muller PCE, et al. Among authors: de vries mc. BMC Med Ethics. 2018 Dec 20;19(1):96. doi: 10.1186/s12910-018-0336-8. BMC Med Ethics. 2018. PMID: 30572875 Free PMC article.

9

Occupational well-being in pediatricians-a survey about work-related posttraumatic stress, depression, and anxiety.

van Steijn ME, Scheepstra KWF, Yasar G, Olff M, de Vries MC, van Pampus MG. van Steijn ME, et al. Among authors: de vries mc. Eur J Pediatr. 2019 May;178(5):681-693. doi: 10.1007/s00431-019-03334-7. Epub 2019 Feb 19. Eur J Pediatr. 2019. PMID: 30783762 Free PMC article.

10

Deferred consent for delivery room studies: the providers' perspective.

den Boer MC, Houtlosser M, Foglia EE, Lopriore E, de Vries MC, Engberts DP, Te Pas AB. den Boer MC, et al. Among authors: de vries mc. Arch Dis Child Fetal Neonatal Ed. 2020 May;105(3):310-315. doi: 10.1136/archdischild-2019-317280. Epub 2019 Aug 19. Arch Dis Child Fetal Neonatal Ed. 2020. PMID: 31427459

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