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Listening to the Patient Voice Adds Value to Cancer Clinical Trials.
Brundage MD, Crossnohere NL, O'Donnell J, Cruz Rivera S, Wilson R, Wu AW, Moher D, Kyte D, Reeve BB, Gilbert A, Chen RC, Calvert MJ, Snyder C. Brundage MD, et al. Among authors: wilson r. J Natl Cancer Inst. 2022 Oct 6;114(10):1323-1332. doi: 10.1093/jnci/djac128. J Natl Cancer Inst. 2022. PMID: 35900186 Free PMC article.
'Give Us The Tools!': development of knowledge transfer tools to support the involvement of patient partners in the development of clinical trial protocols with patient-reported outcomes (PROs), in accordance with SPIRIT-PRO Extension.
Cruz Rivera S, Stephens R, Mercieca-Bebber R, Retzer A, Rutherford C, Price G, Slade A, Aiyegbusi OL, Edge P, Roberts L, Gosden L, Verdi R, Wilson R, Calvert M. Cruz Rivera S, et al. Among authors: wilson r. BMJ Open. 2021 Jun 30;11(6):e046450. doi: 10.1136/bmjopen-2020-046450. BMJ Open. 2021. PMID: 34193492 Free PMC article.
The value of patient-reported outcomes in early-phase clinical trials.
Retzer A, Aiyegbusi OL, Rowe A, Newsome PN, Douglas-Pugh J, Khan S, Mittal S, Wilson R, O'Connor D, Campbell L, Mitchell SA, Calvert M. Retzer A, et al. Among authors: wilson r. Nat Med. 2022 Jan;28(1):18-20. doi: 10.1038/s41591-021-01648-4. Nat Med. 2022. PMID: 35039659 No abstract available.
Patient reported outcome assessment must be inclusive and equitable.
Calvert MJ, Cruz Rivera S, Retzer A, Hughes SE, Campbell L, Molony-Oates B, Aiyegbusi OL, Stover AM, Wilson R, McMullan C, Anderson NE, Turner GM, Davies EH, Verdi R, Velikova G, Kamudoni P, Muslim S, Gheorghe A, O'Connor D, Liu X, Wu AW, Denniston AK. Calvert MJ, et al. Among authors: wilson r. Nat Med. 2022 Jun;28(6):1120-1124. doi: 10.1038/s41591-022-01781-8. Nat Med. 2022. PMID: 35513530 Free article. No abstract available.
Ethical Considerations for the Inclusion of Patient-Reported Outcomes in Clinical Research: The PRO Ethics Guidelines.
Cruz Rivera S, Aiyegbusi OL, Ives J, Draper H, Mercieca-Bebber R, Ells C, Hunn A, Scott JA, Fernandez CV, Dickens AP, Anderson N, Bhatnagar V, Bottomley A, Campbell L, Collett C, Collis P, Craig K, Davies H, Golub R, Gosden L, Gnanasakthy A, Haf Davies E, von Hildebrand M, Lord JM, Mahendraratnam N, Miyaji T, Morel T, Monteiro J, Zwisler AO, Peipert JD, Roydhouse J, Stover AM, Wilson R, Yap C, Calvert MJ. Cruz Rivera S, et al. Among authors: wilson r. JAMA. 2022 May 17;327(19):1910-1919. doi: 10.1001/jama.2022.6421. JAMA. 2022. PMID: 35579638
Feasibility of a new electronic patient-reported outcome (ePRO) system for an advanced therapy clinical trial in immune-mediated inflammatory disease (PROmics): protocol for a qualitative feasibility study.
Hughes SE, McMullan C, Rowe A, Retzer A, Malpass R, Bathurst C, Davies EH, Frost C, McNamara G, Harding R, Price G, Wilson R, Walker A, Newsome PN, Calvert M. Hughes SE, et al. Among authors: wilson r. BMJ Open. 2022 Sep 6;12(9):e063199. doi: 10.1136/bmjopen-2022-063199. BMJ Open. 2022. PMID: 36691123 Free PMC article.
Digitally enabled decentralised research: opportunities to improve the efficiency of clinical trials and observational studies.
Aiyegbusi OL, Davies EH, Myles P, Williams T, Frost C, Haroon S, Hughes SE, Wilson R, McMullan C, Subramanian A, Nirantharakumar K, Calvert MJ. Aiyegbusi OL, et al. Among authors: wilson r. BMJ Evid Based Med. 2023 Oct;28(5):328-331. doi: 10.1136/bmjebm-2023-112253. Epub 2023 Feb 21. BMJ Evid Based Med. 2023. PMID: 36810190 Free PMC article. No abstract available.
Paving the way for patient centricity in real-world evidence (RWE): Qualitative interviews to identify considerations for wider implementation of patient-reported outcomes in RWE generation.
Maruszczyk K, McMullan C, Aiyegbusi OL, Keeley T, Wilson R, Collis P, Bottomley C, Calvert MJ. Maruszczyk K, et al. Among authors: wilson r. Heliyon. 2023 Sep 14;9(9):e20157. doi: 10.1016/j.heliyon.2023.e20157. eCollection 2023 Sep. Heliyon. 2023. PMID: 37809473 Free PMC article.
Development and usability testing of an electronic patient-reported outcome (ePRO) solution for patients with inflammatory diseases in an Advanced Therapy Medicinal Product (ATMP) basket trial.
McMullan C, Retzer A, Hughes SE, Aiyegbusi OL, Bathurst C, Boyd A, Coleman J, Davies EH, Denniston AK, Dunster H, Frost C, Harding R, Hunn A, Kyte D, Malpass R, McNamara G, Mitchell S, Mittal S, Newsome PN, Price G, Rowe A, van Reil W, Walker A, Wilson R, Calvert M. McMullan C, et al. Among authors: wilson r. J Patient Rep Outcomes. 2023 Oct 9;7(1):98. doi: 10.1186/s41687-023-00634-3. J Patient Rep Outcomes. 2023. PMID: 37812323 Free PMC article.
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