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Recruiting Adolescent and Young Adult Cancer Survivors for Patient-Reported Outcome Research: Experiences and Sample Characteristics of the SURVAYA Study.
Vlooswijk C, Poll-Franse LVV, Janssen SHM, Derksen E, Reuvers MJP, Bijlsma R, Kaal SEJ, Kerst JM, Tromp JM, Bos MEMM, Hulle TV, Lalisang RI, Nuver J, Kouwenhoven MCM, van der Graaf WTA, Husson O. Vlooswijk C, et al. Curr Oncol. 2022 Jul 29;29(8):5407-5425. doi: 10.3390/curroncol29080428. Curr Oncol. 2022. PMID: 36005166 Free PMC article.
Cancer survivors not participating in observational patient-reported outcome studies have a lower survival compared to participants: the population-based PROFILES registry.
de Rooij BH, Ezendam NPM, Mols F, Vissers PAJ, Thong MSY, Vlooswijk CCP, Oerlemans S, Husson O, Horevoorts NJE, van de Poll-Franse LV. de Rooij BH, et al. Among authors: vlooswijk ccp. Qual Life Res. 2018 Dec;27(12):3313-3324. doi: 10.1007/s11136-018-1979-0. Epub 2018 Aug 30. Qual Life Res. 2018. PMID: 30167937 Free PMC article.
Beyond Teenage and Young Adult Cancer Care: Care Experiences of Patients Aged 25-39 Years Old in the UK National Health Service.
Lidington E, Darlington AS, Vlooswijk C, Beardsworth S, McCaffrey S, Tang S, Stallard K, Younger E, Edwards P, Ali AI, Nandhabalan M, Din A, Starling N, Larkin J, Stanway S, Nobbenhuis M, Banerjee S, Szucs Z, Gonzalez M, Sirohi B, Husson O, van der Graaf WTA. Lidington E, et al. Among authors: vlooswijk c. Clin Oncol (R Coll Radiol). 2021 Aug;33(8):494-506. doi: 10.1016/j.clon.2021.02.010. Epub 2021 Mar 12. Clin Oncol (R Coll Radiol). 2021. PMID: 33722412 Free article.
'This is not part of my life plan': A qualitative study on the psychosocial experiences and practical challenges in young adults with cancer age 25 to 39 years at diagnosis.
Lidington E, Vlooswijk C, Stallard K, Travis E, Younger E, Edwards P, Nandhabalan M, Hunter N, Sarpal N, Flett D, Din A, Starling N, Larkin J, Stanway S, Nobbenhuis M, Banerjee S, Szucs Z, Darlington AS, Gonzalez M, Sirohi B, van der Graaf WTA, Husson O. Lidington E, et al. Among authors: vlooswijk c. Eur J Cancer Care (Engl). 2021 Sep;30(5):e13458. doi: 10.1111/ecc.13458. Epub 2021 May 3. Eur J Cancer Care (Engl). 2021. PMID: 33942418
Measuring Clinical, Biological, and Behavioral Variables to Elucidate Trajectories of Patient-Reported Outcomes: The PROFILES Registry.
van de Poll-Franse LV, Horevoorts N, Schoormans D, Beijer S, Ezendam NPM, Husson O, Oerlemans S, Schagen SB, Hageman GJ, Van Deun K, van den Hurk C, van Eenbergen M, Mols F; PROFILES Registry Group. van de Poll-Franse LV, et al. J Natl Cancer Inst. 2022 Jun 13;114(6):800-807. doi: 10.1093/jnci/djac047. J Natl Cancer Inst. 2022. PMID: 35201353 Free PMC article.
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