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The Italian National Rare Diseases Registry.
Taruscio D, Kodra Y, Ferrari G, Vittozzi L; National Rare Diseases Registry Collaborating Group. Taruscio D, et al. Among authors: vittozzi l. Blood Transfus. 2014 Apr;12 Suppl 3(Suppl 3):s606-13. doi: 10.2450/2014.0064-14s. Blood Transfus. 2014. PMID: 24922301 Free PMC article.
National plans and strategies on rare diseases in Europe.
Taruscio D, Vittozzi L, Stefanov R. Taruscio D, et al. Among authors: vittozzi l. Adv Exp Med Biol. 2010;686:475-91. doi: 10.1007/978-90-481-9485-8_26. Adv Exp Med Biol. 2010. PMID: 20824461 Review.
Current status of Italian Registries on inherited bleeding disorders.
Hassan HJ, Morfini M, Taruscio D, Abbonizio F, Giampaolo A, Kodra Y, Oliovecchio E, Vittozzi L. Hassan HJ, et al. Among authors: vittozzi l. Blood Transfus. 2014 Apr;12 Suppl 3(Suppl 3):s576-81. doi: 10.2450/2014.0017-14s. Blood Transfus. 2014. PMID: 24922298 Free PMC article. No abstract available.
The Italian National Centre for Rare Diseases: where research and public health translate into action.
Taruscio D, Agresta L, Amato A, Bernardo G, Bernardo L, Braguti F, Carbone P, Carta C, Ceccarini M, Censi F, Coppola S, Crialese P, De Santis M, Diemoz S, Donati C, Gainotti S, Ferrari G, Floridia G, Frank C, Frazzica RG, Gentile AE, Granata O, Kodra Y, Latrofa M, Laricchiuta P, Magrelli A, Morciano C, Polizzi A, Razeto S, Salvatore M, Sanseverino A, Savini D, Torreri P, Tosto F, Villani F, Vincenti G, Vittozzi L. Taruscio D, et al. Among authors: vittozzi l. Blood Transfus. 2014 Apr;12 Suppl 3(Suppl 3):s591-605. doi: 10.2450/2014.0040-14s. Blood Transfus. 2014. PMID: 24922300 Free PMC article. Review. No abstract available.
The current situation and needs of rare disease registries in Europe.
Taruscio D, Gainotti S, Mollo E, Vittozzi L, Bianchi F, Ensini M, Posada M. Taruscio D, et al. Among authors: vittozzi l. Public Health Genomics. 2013;16(6):288-98. doi: 10.1159/000355934. Epub 2014 Feb 3. Public Health Genomics. 2013. PMID: 24503589
EUROPLAN: a project to support the development of national plans on rare diseases in Europe.
Taruscio D, Gentile AE, De Santis M, Ferrelli RM, Posada de la Paz M, Hens M, Huizer J, Fregonese L, Stefanov R, Bottarelli V, Weinman A, Le Cam Y, Gavhed D, Mincarone P, Bushby K, Frazzica RG, Donati C, Vittozzi L, Jessop E. Taruscio D, et al. Among authors: vittozzi l. Public Health Genomics. 2013;16(6):278-87. doi: 10.1159/000355932. Epub 2014 Feb 3. Public Health Genomics. 2013. PMID: 24503588
57 results