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From patients to partners: participant-centric initiatives in biomedical research.
Kaye J, Curren L, Anderson N, Edwards K, Fullerton SM, Kanellopoulou N, Lund D, MacArthur DG, Mascalzoni D, Shepherd J, Taylor PL, Terry SF, Winter SF. Kaye J, et al. Among authors: terry sf. Nat Rev Genet. 2012 Apr 3;13(5):371-6. doi: 10.1038/nrg3218. Nat Rev Genet. 2012. PMID: 22473380 Free PMC article. Review.
Engaging research participants and building trust.
Horn EJ, Edwards K, Terry SF. Horn EJ, et al. Among authors: terry sf. Genet Test Mol Biomarkers. 2011 Dec;15(12):839-40. doi: 10.1089/gtmb.2011.1526. Genet Test Mol Biomarkers. 2011. PMID: 22181985 No abstract available.
Toward better governance of human genomic data.
O'Doherty KC, Shabani M, Dove ES, Bentzen HB, Borry P, Burgess MM, Chalmers D, De Vries J, Eckstein L, Fullerton SM, Juengst E, Kato K, Kaye J, Knoppers BM, Koenig BA, Manson SM, McGrail KM, McGuire AL, Meslin EM, Nicol D, Prainsack B, Terry SF, Thorogood A, Burke W. O'Doherty KC, et al. Among authors: terry sf. Nat Genet. 2021 Jan;53(1):2-8. doi: 10.1038/s41588-020-00742-6. Nat Genet. 2021. PMID: 33414545 Free PMC article.
Including all voices in international data-sharing governance.
Kaye J, Terry SF, Juengst E, Coy S, Harris JR, Chalmers D, Dove ES, Budin-Ljøsne I, Adebamowo C, Ogbe E, Bezuidenhout L, Morrison M, Minion JT, Murtagh MJ, Minari J, Teare H, Isasi R, Kato K, Rial-Sebbag E, Marshall P, Koenig B, Cambon-Thomsen A. Kaye J, et al. Among authors: terry sf. Hum Genomics. 2018 Mar 7;12(1):13. doi: 10.1186/s40246-018-0143-9. Hum Genomics. 2018. PMID: 29514717 Free PMC article.
The haystack is made of needles.
Terry SF, Shelton R, Biggers G, Baker D, Edwards K. Terry SF, et al. Genet Test Mol Biomarkers. 2013 Mar;17(3):175-7. doi: 10.1089/gtmb.2012.1542. Genet Test Mol Biomarkers. 2013. PMID: 23428177 No abstract available.
246 results