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Ethics and legal requirements for data linkage in 14 European countries for children with congenital anomalies.
Claridge H, Tan J, Loane M, Garne E, Barisic I, Cavero-Carbonell C, Dias C, Gatt M, Jordan S, Khoshnood B, Kiuru-Kuhlefelt S, Klungsoyr K, Mokoroa Carollo O, Nelen V, Neville AJ, Pierini A, Randrianaivo H, Rissmann A, Tucker D, de Walle H, Wertelecki W, Morris JK. Claridge H, et al. Among authors: tan j. BMJ Open. 2023 Jul 27;13(7):e071687. doi: 10.1136/bmjopen-2023-071687. BMJ Open. 2023. PMID: 37500278 Free PMC article. Review.
EUROlinkCAT protocol for a European population-based data linkage study investigating the survival, morbidity and education of children with congenital anomalies.
Morris JK, Garne E, Loane M, Barisic I, Densem J, Latos-Bieleńska A, Neville A, Pierini A, Rankin J, Rissmann A, de Walle H, Tan J, Given JE, Claridge H; EUROlinkCAT Consortium. Morris JK, et al. Among authors: tan j. BMJ Open. 2021 Jun 28;11(6):e047859. doi: 10.1136/bmjopen-2020-047859. BMJ Open. 2021. PMID: 34183346 Free PMC article.
Linking a European cohort of children born with congenital anomalies to vital statistics and mortality records: A EUROlinkCAT study.
Loane M, Given JE, Tan J, Reid A, Akhmedzhanova D, Astolfi G, Barišić I, Bertille N, Bonet LB, Carbonell CC, Carollo OM, Coi A, Densem J, Draper E, Garne E, Gatt M, Glinianaia SV, Heino A, Hond ED, Jordan S, Khoshnood B, Kiuru-Kuhlefelt S, Klungsøyr K, Lelong N, Lutke LR, Neville AJ, Ostapchuk L, Puccini A, Rissmann A, Santoro M, Scanlon I, Thys G, Tucker D, Urhoj SK, de Walle HEK, Wellesley D, Zurriaga O, Morris JK. Loane M, et al. Among authors: tan j. PLoS One. 2021 Aug 27;16(8):e0256535. doi: 10.1371/journal.pone.0256535. eCollection 2021. PLoS One. 2021. PMID: 34449798 Free PMC article.
Ten-Year Survival of Children With Congenital Anomalies: A European Cohort Study.
Glinianaia SV, Rankin J, Pierini A, Coi A, Santoro M, Tan J, Reid A, Garne E, Loane M, Given J, Cavero-Carbonell C, de Walle HEK, Gatt M, Gissler M, Heino A, Khoshnood B, Klungsøyr K, Lelong N, Neville AJ, Thayer DS, Tucker D, Urhøj SK, Wellesley D, Zurriaga O, Morris JK. Glinianaia SV, et al. Among authors: tan j. Pediatrics. 2022 Mar 1;149(3):e2021053793. doi: 10.1542/peds.2021-053793. Pediatrics. 2022. PMID: 35146505
Survival of children with rare structural congenital anomalies: a multi-registry cohort study.
Coi A, Santoro M, Pierini A, Rankin J, Glinianaia SV, Tan J, Reid AK, Garne E, Loane M, Given J, Ballardini E, Cavero-Carbonell C, de Walle HEK, Gatt M, García-Villodre L, Gissler M, Jordan S, Kiuru-Kuhlefelt S, Kjaer Urhoj S, Klungsøyr K, Lelong N, Lutke LR, Neville AJ, Rahshenas M, Scanlon I, Wellesley D, Morris JK. Coi A, et al. Among authors: tan j. Orphanet J Rare Dis. 2022 Mar 29;17(1):142. doi: 10.1186/s13023-022-02292-y. Orphanet J Rare Dis. 2022. PMID: 35351164 Free PMC article.
Prescription of cardiovascular medication in children with congenital heart defects across six European Regions from 2000 to 2014: data from the EUROlinkCAT population-based cohort study.
Damkjaer M, Urhoj SK, Tan J, Briggs G, Loane M, Given JE, Barrachina-Bonet L, Cavero-Carbonell C, Coi A, Neville AJ, Heino A, Kiuru-Kuhlefelt S, Jordan S, Scanlon I, Pierini A, Puccini A, Garne E, Morris JK. Damkjaer M, et al. Among authors: tan j. BMJ Open. 2022 Apr 21;12(4):e057400. doi: 10.1136/bmjopen-2021-057400. BMJ Open. 2022. PMID: 35450908 Free PMC article.
Temporal and geographical variations in survival of children born with congenital anomalies in Europe: A multi-registry cohort study.
Santoro M, Coi A, Pierini A, Rankin J, Glinianaia SV, Tan J, Reid A, Garne E, Loane M, Given J, Aizpurua A, Astolfi G, Barisic I, Cavero-Carbonell C, de Walle HEK, Den Hond E, García-Villodre L, Gatt M, Gissler M, Jordan S, Khoshnood B, Kiuru-Kuhlefelt S, Klungsøyr K, Lelong N, Lutke R, Mokoroa O, Nelen V, Neville AJ, Odak L, Rissmann A, Scanlon I, Urhoj SK, Wellesley D, Wertelecki W, Yevtushok L, Morris JK. Santoro M, et al. Among authors: tan j. Paediatr Perinat Epidemiol. 2022 Nov;36(6):792-803. doi: 10.1111/ppe.12884. Epub 2022 Jun 8. Paediatr Perinat Epidemiol. 2022. PMID: 35675091 Free PMC article.
Hospital length of stay among children with and without congenital anomalies across 11 European regions-A population-based data linkage study.
Urhoj SK, Tan J, Morris JK, Given J, Astolfi G, Baldacci S, Barisic I, Brigden J, Cavero-Carbonell C, Evans H, Gissler M, Heino A, Jordan S, Lutke R, Odak L, Puccini A, Santoro M, Scanlon I, de Walle HEK, Wellesley D, Zurriaga Ó, Loane M, Garne E. Urhoj SK, et al. Among authors: tan j. PLoS One. 2022 Jul 22;17(7):e0269874. doi: 10.1371/journal.pone.0269874. eCollection 2022. PLoS One. 2022. PMID: 35867669 Free PMC article.
Gastrostomy and congenital anomalies: a European population-based study.
Garne E, Tan J, Loane M, Baldacci S, Ballardini E, Brigden J, Cavero-Carbonell C, García-Villodre L, Gissler M, Given J, Heino A, Jordan S, Limb E, Neville AJ, Rissmann A, Santoro M, Scanlon L, Urhoj SK, Wellesley DG, Morris J. Garne E, et al. Among authors: tan j. BMJ Paediatr Open. 2022 Jun;6(1):e001526. doi: 10.1136/bmjpo-2022-001526. BMJ Paediatr Open. 2022. PMID: 36053618 Free PMC article.
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