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Protocol for the EARCO Registry: a pan-European observational study in patients with α1-antitrypsin deficiency.
Greulich T, Altraja A, Barrecheguren M, Bals R, Chlumsky J, Chorostowska-Wynimko J, Clarenbach C, Corda L, Corsico AG, Ferrarotti I, Esquinas C, Gouder C, Hećimović A, Ilic A, Ivanov Y, Janciauskiene S, Janssens W, Kohler M, Krams A, Lara B, Mahadeva R, McElvaney G, Mornex JF, O'Hara K, Parr D, Piitulainen E, Schmid-Scherzer K, Seersholm N, Stockley RA, Stolk J, Sucena M, Tanash H, Turner A, Ulmeanu R, Wilkens M, Yorgancioğlu A, Zaharie A, Miravitlles M. Greulich T, et al. Among authors: sucena m. ERJ Open Res. 2020 Mar 2;6(1):00181-2019. doi: 10.1183/23120541.00181-2019. eCollection 2020 Jan. ERJ Open Res. 2020. PMID: 32154291 Free PMC article.
The European Alpha-1 Research Collaboration (EARCO): a new ERS Clinical Research Collaboration to promote research in alpha-1 antitrypsin deficiency.
Miravitlles M, Chorostowska-Wynimko J, Ferrarotti I, McElvaney NG, O'Hara K, Stolk J, Stockley RA, Turner A, Wilkens M, Greulich T; EARCO Clinical Research Collaboration; Members of the EARCO Clinical Research Collaboration. Miravitlles M, et al. Eur Respir J. 2019 Feb 14;53(2):1900138. doi: 10.1183/13993003.00138-2019. Print 2019 Feb. Eur Respir J. 2019. PMID: 30765486 Free article. No abstract available.
Diagnosis and management of α1-antitrypsin deficiency in Europe: an expert survey.
Horváth I, Canotilho M, Chlumský J, Chorostowska-Wynimko J, Corda L, Derom E, Ficker JH, Kneussl M, Miravitlles M, Sucena M, Thabut G, Turner AM, van 't Wout E, McElvaney NG. Horváth I, et al. Among authors: sucena m. ERJ Open Res. 2019 Mar 11;5(1):00171-2018. doi: 10.1183/23120541.00171-2018. eCollection 2019 Feb. ERJ Open Res. 2019. PMID: 30863774 Free PMC article.
Research priorities in α1-antitrypsin deficiency: results of a patients' and healthcare providers' international survey from the EARCO Clinical Research Collaboration.
Barrecheguren M, O'Hara K, Wilkens M, Boyd J, Kolda E, Lara B, Chorostowska-Wynimko J, Ferrarotti I, Chlumský J, Clarenbach C, Greulich T, Miravitlles M, Sucena M. Barrecheguren M, et al. Among authors: sucena m. ERJ Open Res. 2020 Dec 21;6(4):00523-2020. doi: 10.1183/23120541.00523-2020. eCollection 2020 Oct. ERJ Open Res. 2020. PMID: 33447613 Free PMC article.
Alpha 1 Antitrypsin Therapy in Patients with Alpha 1 Antitrypsin Deficiency: Perspectives from a Registry Study and Practical Considerations for Self-Administration During the COVID-19 Pandemic.
Herth FJF, Sandhaus RA, Turner AM, Sucena M, Welte T, Greulich T. Herth FJF, et al. Among authors: sucena m. Int J Chron Obstruct Pulmon Dis. 2021 Nov 1;16:2983-2996. doi: 10.2147/COPD.S325211. eCollection 2021. Int J Chron Obstruct Pulmon Dis. 2021. PMID: 34754184 Free PMC article. Review.
Impact of COVID-19 in Patients With Severe Alpha-1 Antitrypsin Deficiency: The IMCA1 Study of the EARCO Clinical Research Collaboration.
Parr DG, Chorostowska-Wynimko J, Corsico A, Esquinas C, McElvaney GN, Sark AD, Sucena M, Tanash H, Turner AM, Miravitlles M. Parr DG, et al. Among authors: sucena m. Arch Bronconeumol. 2022 Dec;58(12):840-842. doi: 10.1016/j.arbres.2022.07.002. Epub 2022 Jul 11. Arch Bronconeumol. 2022. PMID: 35879122 Free PMC article. No abstract available.
European pathways of care in Alpha-1 Antitrypsin deficiency.
Chorostowska-Wynimko J, Koczulla AR, Sucena M. Chorostowska-Wynimko J, et al. Among authors: sucena m. Respir Med. 2023 Dec;220:107450. doi: 10.1016/j.rmed.2023.107450. Epub 2023 Oct 30. Respir Med. 2023. PMID: 38661678 Free article.
42 results