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Sickle Cell Clinical Research and Intervention Program (SCCRIP): A lifespan cohort study for sickle cell disease progression from the pediatric stage into adulthood.
Hankins JS, Estepp JH, Hodges JR, Villavicencio MA, Robison LL, Weiss MJ, Kang G, Schreiber JE, Porter JS, Kaste SC, Saving KL, Bryant PC, Deyo JE, Nottage KA, King AA, Brandow AM, Lebensburger JD, Adesina O, Chou ST, Zemel BS, Smeltzer MP, Wang WC, Gurney JG. Hankins JS, et al. Among authors: saving kl. Pediatr Blood Cancer. 2018 Sep;65(9):e27228. doi: 10.1002/pbc.27228. Epub 2018 May 24. Pediatr Blood Cancer. 2018. PMID: 29797644
Engaging Caregivers and Providers of Children With Sickle Cell Anemia in Shared Decision Making for Hydroxyurea: Protocol for a Multicenter Randomized Controlled Trial.
Hood AM, Strong H, Nwankwo C, Johnson Y, Peugh J, Mara CA, Shook LM, Brinkman WB, Real FJ, Klein MD, Hackworth R, Badawy SM, Thompson AA, Raphael JL, Yates AM, Smith-Whitley K, King AA, Calhoun C, Creary SE, Piccone CM, Hildenbrand AK, Reader SK, Neumayr L, Meier ER, Sobota AE, Rana S, Britto M, Saving KL, Treadwell M, Quinn CT, Ware RE, Crosby LE. Hood AM, et al. Among authors: saving kl. JMIR Res Protoc. 2021 May 21;10(5):e27650. doi: 10.2196/27650. JMIR Res Protoc. 2021. PMID: 34018965 Free PMC article.
Impact of the COVID-19 Pandemic on the Implementation of Mobile Health to Improve the Uptake of Hydroxyurea in Patients With Sickle Cell Disease: Mixed Methods Study.
Badawy SM, DiMartino L, Brambilla D, Klesges L, Baumann A, Burns E, DeMartino T, Jacobs S, Khan H, Nwosu C, Shah N, Hankins JS; Sickle Cell Disease Implementation Consortium. Badawy SM, et al. JMIR Form Res. 2022 Oct 14;6(10):e41415. doi: 10.2196/41415. JMIR Form Res. 2022. PMID: 36240004 Free PMC article.
Social determinants of health and treatment center affiliation: analysis from the sickle cell disease implementation consortium registry.
Mendez GG, Nocek JM, Brambilla DJ, Jacobs S, Cole O, Kanter J, Glassberg J, Saving KL, Melvin CL, Gibson RW, Treadwell M, Jackson GL, King AA, Gordeuk VR, Kroner B, Hsu LL; Sickle Cell Disease Implementation Consortium. Mendez GG, et al. Among authors: saving kl. BMC Health Serv Res. 2024 Mar 6;24(1):291. doi: 10.1186/s12913-024-10717-6. BMC Health Serv Res. 2024. PMID: 38448911 Free PMC article.
Hydroxyurea Optimization through Precision Study (HOPS): study protocol for a randomized, multicenter trial in children with sickle cell anemia.
Meier ER, Creary SE, Heeney MM, Dong M, Appiah-Kubi AO, Nelson SC, Niss O, Piccone C, Quarmyne MO, Quinn CT, Saving KL, Scott JP, Talati R, Latham TS, Pfeiffer A, Shook LM, Vinks AA, Lane A, McGann PT. Meier ER, et al. Among authors: saving kl. Trials. 2020 Nov 27;21(1):983. doi: 10.1186/s13063-020-04912-z. Trials. 2020. PMID: 33246482 Free PMC article.
Flow cytometry of neonatal platelet RNA.
Joseph MA, Adams D, Maragos J, Saving KL. Joseph MA, et al. Among authors: saving kl. J Pediatr Hematol Oncol. 1996 Aug;18(3):277-81. doi: 10.1097/00043426-199608000-00008. J Pediatr Hematol Oncol. 1996. PMID: 8689341
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