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Randomized controlled trial of an internet-based self-guided hand exercise program to improve hand function in people with systemic sclerosis: the Scleroderma Patient-centered Intervention Network Hand Exercise Program (SPIN-HAND) trial.
Kwakkenbos L, Carrier ME, Welling J, Levis B, Levis AW, Sauve M, Turner KA, Tao L, Aguila K, Carboni-Jiménez A, Cañedo-Ayala M, Harb S, van den Ende C, Hudson M, van Breda W, Nguyen C, Boutron I, Rannou F, Thombs BD, Mouthon L; SPIN Investigators. Kwakkenbos L, et al. Trials. 2022 Dec 12;23(1):994. doi: 10.1186/s13063-022-06923-4. Trials. 2022. PMID: 36510233 Free PMC article. Clinical Trial.
Randomized feasibility trial of the Scleroderma Patient-centered Intervention Network Self-Management (SPIN-SELF) Program.
Kwakkenbos L, Østbø N, Carrier ME, Nielson WR, Fedoruk C, Levis B, Henry RS, Pope J, Frech T, Gholizadeh S, Johnson SR, Piotrowski P, Jewett LR, Gordon J, Chung L, Bilsker D, Tao L, Turner KA, Cumin J, Welling J, Fortuné C, Leite C, Gottesman K, Sauvé M, Reyna TSR, Hudson M, Larche M, van Breda W, Suarez-Almazor ME, Bartlett SJ, Malcarne VL, Mayes MD, Boutron I, Mouthon L, Benedetti A, Thombs BD; SPIN Investigators. Kwakkenbos L, et al. Pilot Feasibility Stud. 2022 Feb 26;8(1):45. doi: 10.1186/s40814-022-00994-5. Pilot Feasibility Stud. 2022. PMID: 35219340 Free PMC article.
Randomized feasibility trial of the Scleroderma Patient-centered Intervention Network hand exercise program (SPIN-HAND).
Kwakkenbos L, Carrier ME, Welling J, Turner KA, Cumin J, Pépin M, van den Ende C, Schouffoer AA, Hudson M, van Breda W, Sauve M, Mayes MD, Malcarne VL, Nielson WR, Nguyen C, Boutron I, Rannou F, Thombs BD, Mouthon L; SPIN Investigators. Kwakkenbos L, et al. PeerJ. 2022 Aug 4;10:e13471. doi: 10.7717/peerj.13471. eCollection 2022. PeerJ. 2022. PMID: 35945943 Free PMC article. Clinical Trial.
Validity, Reliability, and Differential Item Functioning of English and French Versions of the 10-Item Connor-Davidson Resilience Scale in Systemic Sclerosis: A Scleroderma Patient-Centered Intervention Network Cohort Study.
Neyer MA, Henry RS, Carrier ME, Kwakkenbos L, Wojeck RK, Gietzen A, Gottesman K, Guillot G, Lawrie-Jones A, Mayes MD, Mouthon L, Nielson WR, Richard M, Worron-Sauvé M, Harel D, Malcarne VL, Bartlett SJ, Thombs BD; SPIN Investigators. Neyer MA, et al. Arthritis Care Res (Hoboken). 2023 Nov;75(11):2369-2378. doi: 10.1002/acr.25139. Epub 2023 Jun 7. Arthritis Care Res (Hoboken). 2023. PMID: 37128826
The Scleroderma Patient-Centered Intervention Network Self-Management Program: Protocol for a Randomized Feasibility Trial.
Carrier ME, Kwakkenbos L, Nielson WR, Fedoruk C, Nielsen K, Milette K, Pope J, Frech T, Gholizadeh S, Hummers L, Johnson SR, Piotrowski P, Jewett L, Gordon J, Chung L, Bilsker D, Turner KA, Cumin J, Welling J, Fortune C, Leite C, Gottesman K, Sauve M, Rodríguez-Reyna TS, Hudson M, Larche M, van Breda W, Suarez-Almazor ME, Bartlett SJ, Malcarne VL, Mayes MD, Boutron I, Mouthon L, Wigley F, Thombs BD; SPIN Investigators. Carrier ME, et al. JMIR Res Protoc. 2020 Apr 24;9(4):e16799. doi: 10.2196/16799. JMIR Res Protoc. 2020. PMID: 32329747 Free PMC article.
Mental health before and during the pandemic in people with systemic sclerosis.
Henry RS, Kwakkenbos L, Carrier ME, Negeri Z, Bourgeault A, Patten S, Bartlett SJ, Mouthon L, Varga J, Benedetti A, Thombs BD; SPIN COVID-19 Patient Advisory Team; SPIN investigators. Henry RS, et al. Lancet Rheumatol. 2022 Feb;4(2):e82-e85. doi: 10.1016/S2665-9913(21)00363-5. Epub 2021 Dec 3. Lancet Rheumatol. 2022. PMID: 34901884 Free PMC article. No abstract available.
Patterns of patient-reported symptoms and association with sociodemographic and systemic sclerosis disease characteristics: a scleroderma Patient-centered Intervention Network (SPIN) Cohort cross-sectional study.
Wojeck RK, Knisely MR, Bailey DE, Somers TJ, Kwakkenbos L, Carrier ME, Nielson WR, Bartlett SJ, Malcarne VL, Hudson M, Levis B, Benedetti A, Mouthon L, Thombs BD, Silva SG; SPIN Investigators. Wojeck RK, et al. EClinicalMedicine. 2023 Jul 20;62:102104. doi: 10.1016/j.eclinm.2023.102104. eCollection 2023 Aug. EClinicalMedicine. 2023. PMID: 37533421 Free PMC article.
Systemic sclerosis and COVID-19 vaccines: a SPIN Cohort study.
Gordon JK, Showalter K, Wu Y, Kwakkenbos L, Carrier ME, Henry RS, Østbø N, Nordlund J, Bourgeault A, Cañedo-Ayala M, Carboni-Jiménez A, Denton CP, Mouthon L, Thombs BD, Spiera RF; SPIN COVID-19 Patient Advisory Team on behalf of the SPIN Investigators. Gordon JK, et al. Lancet Rheumatol. 2022 Apr;4(4):e243-e246. doi: 10.1016/S2665-9913(21)00416-1. Epub 2022 Jan 18. Lancet Rheumatol. 2022. PMID: 35072109 Free PMC article. No abstract available.
The Scleroderma Patient-Centered Intervention Network Cohort: baseline clinical features and comparison with other large scleroderma cohorts.
Dougherty DH, Kwakkenbos L, Carrier ME, Salazar G, Assassi S, Baron M, Bartlett SJ, Furst DE, Gottesman K, van den Hoogen F, Malcarne VL, Mouthon L, Nielson WR, Poiraudeau S, Sauvé M, Boire G, Bruns A, Chung L, Denton C, Dunne JV, Fortin P, Frech T, Gill A, Gordon J, Herrick AL, Hinchcliff M, Hudson M, Johnson SR, Jones N, Kafaja S, Larché M, Manning J, Pope J, Spiera R, Steen V, Sutton E, Thorne C, Wilcox P, Thombs BD, Mayes MD; SPIN Investigators. Dougherty DH, et al. Rheumatology (Oxford). 2018 Sep 1;57(9):1623-1631. doi: 10.1093/rheumatology/key139. Rheumatology (Oxford). 2018. PMID: 29868924 Clinical Trial.
Randomized feasibility trial of the Scleroderma Patient-centered Intervention Network hand exercise program (SPIN-HAND): Study protocol.
Carrier ME, Kwakkenbos L, Boutron I, Welling J, Sauve M, van den Ende C, Schouffoer AA, Hudson M, Thombs BD, Mouthon L; SPIN Investigators*. Carrier ME, et al. J Scleroderma Relat Disord. 2018 Feb;3(1):91-97. doi: 10.5301/jsrd.5000263. Epub 2017 Oct 16. J Scleroderma Relat Disord. 2018. PMID: 35382119 Free PMC article. Clinical Trial.
36 results