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Clinical trials in pediatric ALS: a TRICALS feasibility study.
Amyotroph Lateral Scler Frontotemporal Degener. 2022 Nov;23(7-8):481-488. doi: 10.1080/21678421.2021.2024856. Epub 2022 Feb 16.
Amyotroph Lateral Scler Frontotemporal Degener. 2022.
PMID: 35172656
Free PMC article.
TRICALS: creating a highway toward a cure.
van Eijk RPA, Kliest T, McDermott CJ, Roes KCB, Van Damme P, Chio A, Weber M, Ingre C, Corcia P, Povedano M, Reviers E, van Es MA, Al-Chalabi A, Hardiman O, van den Berg LH.
van Eijk RPA, et al. Among authors: reviers e.
Amyotroph Lateral Scler Frontotemporal Degener. 2020 Nov;21(7-8):496-501. doi: 10.1080/21678421.2020.1788092. Epub 2020 Jul 9.
Amyotroph Lateral Scler Frontotemporal Degener. 2020.
PMID: 32643415
Free article.
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A Road Map for Remote Digital Health Technology for Motor Neuron Disease.
van Eijk RPA, Beelen A, Kruitwagen ET, Murray D, Radakovic R, Hobson E, Knox L, Helleman J, Burke T, Rubio Pérez MÁ, Reviers E, Genge A, Steyn FJ, Ngo S, Eaglesham J, Roes KCB, van den Berg LH, Hardiman O, McDermott CJ.
van Eijk RPA, et al. Among authors: reviers e.
J Med Internet Res. 2021 Sep 22;23(9):e28766. doi: 10.2196/28766.
J Med Internet Res. 2021.
PMID: 34550089
Free PMC article.
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Survey on patients' organisations' knowledge and position paper on screening for inherited neuromuscular diseases in Europe.
Lamy F, Ferlini A; ERN EURO-NMD Patient Advisory Board; Evangelista T.
Lamy F, et al.
Orphanet J Rare Dis. 2021 Feb 10;16(1):75. doi: 10.1186/s13023-020-01670-8.
Orphanet J Rare Dis. 2021.
PMID: 33568176
Free PMC article.
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European Academy of Neurology (EAN) guideline on the management of amyotrophic lateral sclerosis in collaboration with European Reference Network for Neuromuscular Diseases (ERN EURO-NMD).
Van Damme P, Al-Chalabi A, Andersen PM, Chiò A, Couratier P, De Carvalho M, Hardiman O, Kuźma-Kozakiewicz M, Ludolph A, McDermott CJ, Mora JS, Petri S, Probyn K, Reviers E, Salachas F, Silani V, Tysnes OB, van den Berg LH, Villanueva G, Weber M.
Van Damme P, et al. Among authors: reviers e.
Eur J Neurol. 2024 Jun;31(6):e16264. doi: 10.1111/ene.16264. Epub 2024 Mar 12.
Eur J Neurol. 2024.
PMID: 38470068
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EURO-NMD registry: federated FAIR infrastructure, innovative technologies and concepts of a patient-centred registry for rare neuromuscular disorders.
Atalaia A, Wandrei D, Lalout N, Thompson R, Tassoni A, 't Hoen PAC, Athanasiou D, Baker SA, Sakellariou P, Paliouras G, D'Angelo C, Horvath R, Mancuso M, van der Beek N, Kornblum C, Kirschner J, Pareyson D, Bassez G, Blacas L, Jacoupy M, Eng C, Lamy F, Plançon JP, Haberlova J, Brusse E, Hoeijmakers JGJ, de Visser M, Claeys KG, Paradas C, Toscano A, Silani V, Gyenge M, Reviers E, Hamroun D, Vroom E, Wilkinson MD, Lochmuller H, Evangelista T.
Atalaia A, et al. Among authors: reviers e.
Orphanet J Rare Dis. 2024 Feb 14;19(1):66. doi: 10.1186/s13023-024-03059-3.
Orphanet J Rare Dis. 2024.
PMID: 38355534
Free PMC article.
Review.
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The preferences of people with amyotrophic lateral sclerosis on riluzole treatment in Europe.
Ludolph AC, Grandjean H, Reviers E, De Micheli V, Bianchi C, Cardosi L, Russ H, Silani V.
Ludolph AC, et al. Among authors: reviers e.
Sci Rep. 2023 Dec 15;13(1):22497. doi: 10.1038/s41598-023-49424-3.
Sci Rep. 2023.
PMID: 38110502
Free PMC article.
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Lithium carbonate in amyotrophic lateral sclerosis patients homozygous for the C-allele at SNP rs12608932 in UNC13A: protocol for a confirmatory, randomized, group-sequential, event-driven, double-blind, placebo-controlled trial.
Willemse SW, Roes KCB, Van Damme P, Hardiman O, Ingre C, Povedano M, Wray NR, Gijzen M, de Pagter MS, Demaegd KC, Janse AFC, Vink RG, Sleutjes BTHM, Chiò A, Corcia P, Reviers E, Al-Chalabi A, Kiernan MC, van den Berg LH, van Es MA, van Eijk RPA.
Willemse SW, et al. Among authors: reviers e.
Trials. 2022 Dec 5;23(1):978. doi: 10.1186/s13063-022-06906-5.
Trials. 2022.
PMID: 36471413
Free PMC article.
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