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Fondazione Telethon and Unione Italiana Lotta alla Distrofia Muscolare, a successful partnership for neuromuscular healthcare research of value for patients.
Orphanet J Rare Dis. 2021 Oct 2;16(1):408. doi: 10.1186/s13023-021-02047-1.
Orphanet J Rare Dis. 2021.
PMID: 34600567
Free PMC article.
Review.
"Be an ambassador for change that you would like to see": a call to action to all stakeholders for co-creation in healthcare and medical research to improve quality of life of people with a neuromuscular disease.
Ambrosini A, Quinlivan R, Sansone VA, Meijer I, Schrijvers G, Tibben A, Padberg G, de Wit M, Sterrenburg E, Mejat A, Breukel A, Rataj M, Lochmüller H, Willmann R; 235th ENMC workshop study group.
Ambrosini A, et al.
Orphanet J Rare Dis. 2019 Jun 7;14(1):126. doi: 10.1186/s13023-019-1103-8.
Orphanet J Rare Dis. 2019.
PMID: 31174585
Free PMC article.
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