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Impact of the COVID-19 Pandemic on People Living With Rare Diseases and Their Families: Results of a National Survey.
Macaluso M, Rothenberg ME, Ferkol T, Kuhnell P, Kaminski HJ, Kimberlin DW, Benatar M, Chehade M; Principal Investigators of the Rare Diseases Clinical Research Network – Cycle 4. Macaluso M, et al. JMIR Public Health Surveill. 2024 Feb 14;10:e48430. doi: 10.2196/48430. JMIR Public Health Surveill. 2024. PMID: 38354030 Free PMC article.
A proposal for the addressing the needs of the pediatric pulmonary work force.
Gaston B, Laguna TA, Noah TL, Hagood J, Voynow J, Ferkol T, Hershenson M, Boyne K, Delecaris A, Ross K, Gozal D, Celedón JC, Abman SH, Moore P, Davis S, Cornfield DN, Murphy T. Gaston B, et al. Pediatr Pulmonol. 2020 Aug;55(8):1859-1867. doi: 10.1002/ppul.24856. Epub 2020 Jun 12. Pediatr Pulmonol. 2020. PMID: 32531116 Free PMC article.