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Data Quality in Rare Diseases Registries.
Kodra Y, Posada de la Paz M, Coi A, Santoro M, Bianchi F, Ahmed F, Rubinstein YR, Weinbach J, Taruscio D. Kodra Y, et al. Among authors: posada de la paz m. Adv Exp Med Biol. 2017;1031:149-164. doi: 10.1007/978-3-319-67144-4_8. Adv Exp Med Biol. 2017. PMID: 29214570 Review.
Public health research on rare diseases.
Alonso V, Villaverde-Hueso A, Hens M, Morales-Piga A, Abaitua I, Posada de la Paz M. Alonso V, et al. Among authors: posada de la paz m. Georgian Med News. 2011 Apr;(193):11-6. Georgian Med News. 2011. PMID: 21617266
Delphi approach to select rare diseases for a European representative survey. The BURQOL-RD study.
Linertová R, Serrano-Aguilar P, Posada-de-la-Paz M, Hens-Pérez M, Kanavos P, Taruscio D, Schieppati A, Stefanov R, Péntek M, Delgado C, von der Schulenburg JM, Persson U, Chevreul K, Fattore G, Worbes-Cerezo M, Sefton M, López-Bastida J; BURQOL-RD Research Group. Linertová R, et al. Among authors: posada de la paz m. Health Policy. 2012 Nov;108(1):19-26. doi: 10.1016/j.healthpol.2012.08.001. Epub 2012 Sep 2. Health Policy. 2012. PMID: 22947412
EUROPLAN: a project to support the development of national plans on rare diseases in Europe.
Taruscio D, Gentile AE, De Santis M, Ferrelli RM, Posada de la Paz M, Hens M, Huizer J, Fregonese L, Stefanov R, Bottarelli V, Weinman A, Le Cam Y, Gavhed D, Mincarone P, Bushby K, Frazzica RG, Donati C, Vittozzi L, Jessop E. Taruscio D, et al. Among authors: de santis m, posada de la paz m. Public Health Genomics. 2013;16(6):278-87. doi: 10.1159/000355932. Epub 2014 Feb 3. Public Health Genomics. 2013. PMID: 24503588
Respiratory diseases registries in the national registry of rare diseases.
Lara Gallego B, Abaitua Borda I, Galán Gil G, Castillo Villegas D, Casanova Espinosa Á, Cano Jiménez E, Ojanguren Arranz I, Posada de la Paz M. Lara Gallego B, et al. Among authors: posada de la paz m. Arch Bronconeumol. 2014 Sep;50(9):397-403. doi: 10.1016/j.arbres.2014.02.007. Epub 2014 Apr 1. Arch Bronconeumol. 2014. PMID: 24703816 English, Spanish.
The Quality of Rare Disease Registries: Evaluation and Characterization.
Coi A, Santoro M, Villaverde-Hueso A, Lipucci Di Paola M, Gainotti S, Taruscio D, Posada de la Paz M, Bianchi F. Coi A, et al. Among authors: posada de la paz m. Public Health Genomics. 2016;19(2):108-15. doi: 10.1159/000444476. Epub 2016 Mar 22. Public Health Genomics. 2016. PMID: 26998603
Social/economic costs and health-related quality of life in patients with Duchenne muscular dystrophy in Europe.
Cavazza M, Kodra Y, Armeni P, De Santis M, López-Bastida J, Linertová R, Oliva-Moreno J, Serrano-Aguilar P, Posada-de-la-Paz M, Taruscio D, Schieppati A, Iskrov G, Péntek M, von der Schulenburg JM, Kanavos P, Chevreul K, Persson U, Fattore G; BURQOL-RD Research Network. Cavazza M, et al. Among authors: de santis m, posada de la paz m. Eur J Health Econ. 2016 Apr;17 Suppl 1:19-29. doi: 10.1007/s10198-016-0782-5. Epub 2016 Apr 2. Eur J Health Econ. 2016. PMID: 27038625
Social/economic costs and health-related quality of life in patients with scleroderma in Europe.
López-Bastida J, Linertová R, Oliva-Moreno J, Serrano-Aguilar P, Posada-de-la-Paz M, Kanavos P, Taruscio D, Schieppati A, Iskrov G, Péntek M, Delgado C, von der Schulenburg JM, Persson U, Chevreul K, Fattore G; BURQOL-RD Research Network. López-Bastida J, et al. Among authors: posada de la paz m. Eur J Health Econ. 2016 Apr;17 Suppl 1:109-17. doi: 10.1007/s10198-016-0789-y. Epub 2016 Apr 2. Eur J Health Econ. 2016. PMID: 27038626
149 results