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Research Priorities of the Pediatric Spinal Cord Injury Population: An International Insight for Rehabilitation Care.
Pediatr Neurol. 2024 Feb;151:121-130. doi: 10.1016/j.pediatrneurol.2023.11.010. Epub 2023 Dec 1.
Pediatr Neurol. 2024.
PMID: 38154239
METHODS: A cross-sectional survey, designed by the Pan-European Paediatric Spinal Cord Injury (PEPSCI) Collaboration, was performed at six European countries. Dyad data from 202 participants, youth with pediatric-onset SCI (n = 101) and their parents/caregivers (n = …
METHODS: A cross-sectional survey, designed by the Pan-European Paediatric Spinal Cord Injury (PEPSCI) Collaboration, was perf …
Pediatric health and life domain priorities: A national survey of people with spinal cord injury and their parents and caregivers.
Ríos-León M, Onal B, Arango-Lasprilla JC, Augutis M, Civicos-Sanchez N, Graham A, Kelly EH, López-Dolado E, Scheel-Sailer A, Subiñas-Medina P; PEPSCI Collaboration; Taylor J.
Ríos-León M, et al.
J Spinal Cord Med. 2024 Jan;47(1):155-167. doi: 10.1080/10790268.2022.2087140. Epub 2022 Jul 1.
J Spinal Cord Med. 2024.
PMID: 35776093
Free PMC article.
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Health and LifeDomain ResearchPriorities in Children, Adolescents and Young Adults With Pediatric-Onset Spinal Cord Injury: A National Cross-Sectional Survey in England.
Onal B, León MR, Augutis M, Mattacola E, Graham A, Hart K, Kelly E, Scheel-Sailer A; PEPSCI Collaboration; Taylor J.
Onal B, et al.
Top Spinal Cord Inj Rehabil. 2022 Spring;28(2):91-110. doi: 10.46292/sci21-00053. Epub 2022 Apr 12.
Top Spinal Cord Inj Rehabil. 2022.
PMID: 35521061
Free PMC article.
METHODS: Youth with pediatric-onset SCI (6 months) were recruited from five English rehabilitation centers and invited with their parents/caregivers to complete the age-appropriate surveys designed by the Pan-European Paediatric Spinal Cord Injury (PEPSCI) collaboration …
METHODS: Youth with pediatric-onset SCI (6 months) were recruited from five English rehabilitation centers and invited with their parents/ca …
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Needs and Research Priorities for Young People with Spinal Cord Lesion or Spina Bifida and Their Caregivers: A National Survey in Switzerland within the PEPSCI Collaboration.
Benninger I, Lampart P, Mueller G, Augutis M, Eriks-Hoogland I, Grunt S, Kelly EH, Padden B, Scherer C, Shavit S, Taylor J, Rutz E, Scheel-Sailer A, Pepsci-Collaboration.
Benninger I, et al.
Children (Basel). 2022 Feb 27;9(3):318. doi: 10.3390/children9030318.
Children (Basel). 2022.
PMID: 35327690
Free PMC article.
The aim of this study was to describe the needs and research priorities of Swiss children/adolescents and young adults (from here, "young people") with spinal cord injury/disorder (SCI/D) or spina bifida (SB) and their parents in the health and life domains as part of the interna …
The aim of this study was to describe the needs and research priorities of Swiss children/adolescents and young adults (from here, "young pe …
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