Peay HL - Search Results

1

Practical Considerations for Using Online Methods to Engage Patients in Guideline Development.

Grant S, Hazlewood GS, Peay HL, Lucas A, Coulter I, Fink A, Khodyakov D. Grant S, et al. Among authors: peay hl. Patient. 2018 Apr;11(2):155-166. doi: 10.1007/s40271-017-0280-6. Patient. 2018. PMID: 29030831 Review.

2

Defining critical educational components of informed consent for genetic testing: views of US-based genetic counselors and medical geneticists.

Hallquist MLG, Borensztein MJ, Coughlin CR 2nd, Buchanan AH, Andrew Faucett W, Peay HL, Smith ME, Tricou EP, Uhlmann WR, Wain KE, Ormond KE. Hallquist MLG, et al. Among authors: peay hl. Eur J Hum Genet. 2023 Oct;31(10):1165-1174. doi: 10.1038/s41431-023-01401-0. Epub 2023 Jun 12. Eur J Hum Genet. 2023. PMID: 37308598

3

Knowledge of carrier status and barriers to testing among mothers of sons with Duchenne or Becker muscular dystrophy.

Bogue L, Peay H, Martin A, Lucas A, Ramchandren S. Bogue L, et al. Neuromuscul Disord. 2016 Dec;26(12):860-864. doi: 10.1016/j.nmd.2016.09.008. Epub 2016 Sep 16. Neuromuscul Disord. 2016. PMID: 27863875 Free PMC article.

4

Engaging Patients and Caregivers Managing Rare Diseases to Improve the Methods of Clinical Guideline Development: A Research Protocol.

Khodyakov D, Kinnett K, Grant S, Lucas A, Martin A, Denger B, Peay H, Coulter I, Fink A. Khodyakov D, et al. JMIR Res Protoc. 2017 Apr 28;6(4):e57. doi: 10.2196/resprot.6902. JMIR Res Protoc. 2017. PMID: 28455279 Free PMC article.

5

Delayed onset of ambulation in boys with Duchenne muscular dystrophy: Potential use as an endpoint in clinical trials.

Gissy JJ, Johnson T, Fox DJ, Kumar A, Ciafaloni E, van Essen AJ, Peay HL, Martin A, Lucas A, Finkel RS; MD STARnet. Gissy JJ, et al. Among authors: peay hl. Neuromuscul Disord. 2017 Oct;27(10):905-910. doi: 10.1016/j.nmd.2017.06.002. Epub 2017 Jul 21. Neuromuscul Disord. 2017. PMID: 28739181 Free PMC article.

6

An Evidence-Based, Community-Engaged Approach to Develop an Interactive Deliberation Tool for Pediatric Neuromuscular Trials.

Moultrie RR, Lewis MA, Paquin RS, Lucas A, Jarecki J, Peay HL. Moultrie RR, et al. Among authors: peay hl. J Genet Couns. 2018 Apr;27(2):416-425. doi: 10.1007/s10897-017-0190-8. Epub 2017 Dec 20. J Genet Couns. 2018. PMID: 29260486

7

DMD genotype correlations from the Duchenne Registry: Endogenous exon skipping is a factor in prolonged ambulation for individuals with a defined mutation subtype.

Wang RT, Barthelemy F, Martin AS, Douine ED, Eskin A, Lucas A, Lavigne J, Peay H, Khanlou N, Sweeney L, Cantor RM, Miceli MC, Nelson SF. Wang RT, et al. Hum Mutat. 2018 Sep;39(9):1193-1202. doi: 10.1002/humu.23561. Epub 2018 Jul 12. Hum Mutat. 2018. PMID: 29907980 Free PMC article.

8

How Do Members of the Duchenne and Becker Muscular Dystrophy Community Perceive a Discrete-Choice Experiment Incorporating Uncertain Treatment Benefit? An Application of Research as an Event.

Bridges JFP, Tsai JH, Janssen E, Crossnohere NL, Fischer R, Peay H. Bridges JFP, et al. Patient. 2019 Apr;12(2):247-257. doi: 10.1007/s40271-018-0330-8. Patient. 2019. PMID: 30259384

9

Practical Considerations in Using Online Modified-Delphi Approaches to Engage Patients and Other Stakeholders in Clinical Practice Guideline Development.

Khodyakov D, Grant S, Denger B, Kinnett K, Martin A, Peay H, Coulter I. Khodyakov D, et al. Patient. 2020 Feb;13(1):11-21. doi: 10.1007/s40271-019-00389-4. Patient. 2020. PMID: 31544219 Free PMC article.

10

Using an Online, Modified Delphi Approach to Engage Patients and Caregivers in Determining the Patient-Centeredness of Duchenne Muscular Dystrophy Care Considerations.

Khodyakov D, Grant S, Denger B, Kinnett K, Martin A, Booth M, Armstrong C, Dao E, Chen C, Coulter I, Peay H, Hazlewood G, Street N. Khodyakov D, et al. Med Decis Making. 2019 Nov;39(8):1019-1031. doi: 10.1177/0272989X19883631. Epub 2019 Nov 13. Med Decis Making. 2019. PMID: 31722623 Free PMC article.

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