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Page 1
Role of Patients and Parents in Pediatric Drug Development.
Tsang VWL, West L, Woods C, Koh CJ, McCune S, Mullin T, Smith SR, Gaillard S, Claverol J, Nafria B, Preston J, Dicks P, Thompson C. Tsang VWL, et al. Among authors: nafria b. Ther Innov Regul Sci. 2019 Sep;53(5):601-608. doi: 10.1177/2168479018820875. Epub 2019 Jan 20. Ther Innov Regul Sci. 2019. PMID: 30663334 Free PMC article.
Children's views on taking medicines and participating in clinical trials.
Nordenmalm S, Kimland E, Ligas F, Lehmann B, Claverol J, Nafria B, Tötterman AM, Pelle B. Nordenmalm S, et al. Among authors: nafria b. Arch Dis Child. 2019 Sep;104(9):900-905. doi: 10.1136/archdischild-2018-316511. Epub 2019 Jun 14. Arch Dis Child. 2019. PMID: 31201156
European research networks to facilitate drug research in children.
Turner MA, Cheng K, de Wildt S, Hildebrand H, Attar S, Rossi P, Bonifazi D, Ceci A, Claverol J, Nafria B, Giaquinto C. Turner MA, et al. Among authors: nafria b. Br J Clin Pharmacol. 2022 Oct;88(10):4258-4266. doi: 10.1111/bcp.14545. Epub 2020 Sep 20. Br J Clin Pharmacol. 2022. PMID: 32893382 Free PMC article. Review.
The conect4children (c4c) Consortium: Potential for Improving European Clinical Research into Medicines for Children.
Turner MA, Hildebrand H, Fernandes RM, de Wildt SN, Mahler F, Hankard R, Leary R, Bonifazi F, Nobels P, Cheng K, Attar S, Rossi P, Rocchi F, Claverol J, Nafria B, Giaquinto C. Turner MA, et al. Among authors: nafria b. Pharmaceut Med. 2021 Mar;35(2):71-79. doi: 10.1007/s40290-020-00373-6. Epub 2021 Feb 4. Pharmaceut Med. 2021. PMID: 33539007 Free PMC article.
Children's Preferences for Oral Dosage Forms and Their Involvement in Formulation Research via EPTRI (European Paediatric Translational Research Infrastructure).
Alessandrini E, Brako F, Scarpa M, Lupo M, Bonifazi D, Pignataro V, Cavallo M, Cullufe O, Enache C, Nafria B, Claverol J, De Taeye L, Vermeulen E, Preston J, Tuleu C. Alessandrini E, et al. Among authors: nafria b. Pharmaceutics. 2021 May 15;13(5):730. doi: 10.3390/pharmaceutics13050730. Pharmaceutics. 2021. PMID: 34063499 Free PMC article.
Optimizing expert and patient input in pediatric trial design: Lessons learned and recommendations from a collaboration between conect4children and European Patient-CEntric ClinicAl TRial PLatforms.
Dhaenens BAE, Mahler F, Batchelor H, Dicks P, Gaillard S, Nafria B, Kopp-Schneider A, Ribeiro MA, Schwab M, Sparber-Sauer M, Leubner J, de Wildt SN, Oostenbrink R. Dhaenens BAE, et al. Among authors: nafria b. Clin Transl Sci. 2023 Aug;16(8):1458-1468. doi: 10.1111/cts.13547. Epub 2023 Jun 30. Clin Transl Sci. 2023. PMID: 37391924 Free PMC article.
Developing rights-based standards for children having tests, treatments, examinations and interventions: using a collaborative, multi-phased, multi-method and multi-stakeholder approach to build consensus.
Bray L, Carter B, Kiernan J, Horowicz E, Dixon K, Ridley J, Robinson C, Simmons A, Craske J, Sinha S, Morton L, Nafria B, Forsner M, Rullander AC, Nilsson S, Darcy L, Karlsson K, Hubbuck C, Brenner M, Spencer-Little S, Evans K, Rowland A, Hilliard C, Preston J, Leroy PL, Roland D, Booth L, Davies J, Saron H, Mansson ME, Cox A, Ford K, Campbell S, Blamires J, Dickinson A, Neufeld M, Peck B, de Avila M, Feeg V, Mediani HS, Atout M, Majamanda MD, North N, Chambers C, Robichaud F. Bray L, et al. Among authors: nafria b. Eur J Pediatr. 2023 Oct;182(10):4707-4721. doi: 10.1007/s00431-023-05131-9. Epub 2023 Aug 11. Eur J Pediatr. 2023. PMID: 37566281 Free PMC article.
How Did the COVID-19 Lockdown Affect Children and Adolescent's Well-Being: Spanish Parents, Children, and Adolescents Respond.
Ajanovic S, Garrido-Aguirre J, Baro B, Balanza N, Varo R, Millat-Martínez P, Arias S, Fonollosa J, Perera-Lluna A, Jordan I, Muñoz-Almagro C, Bonet-Carne E, Crosas-Soler A, Via E, Nafria B, García-García JJ, Bassat Q. Ajanovic S, et al. Among authors: nafria b. Front Public Health. 2021 Nov 25;9:746052. doi: 10.3389/fpubh.2021.746052. eCollection 2021. Front Public Health. 2021. PMID: 34900898 Free PMC article.
Understanding multi-stakeholder needs, preferences and expectations to define effective practices and processes of patient engagement in medicine development: A mixed-methods study.
Faulkner SD, Sayuri Ii S, Pakarinen C, Somers F, Jose Vicente Edo M, Prieto Remon L, Diaz Ponce A, Gove D, Ferrer E, Nafria B, Bertelsen N, Boudes M, Brooke N, Moutet A, Fahy N. Faulkner SD, et al. Among authors: nafria b. Health Expect. 2021 Apr;24(2):601-616. doi: 10.1111/hex.13207. Epub 2021 Feb 17. Health Expect. 2021. PMID: 33599067 Free PMC article.
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