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Consensus on the definitions and descriptions of the domains of the OMERACT Core Outcome Set for shared decision making interventions in rheumatology trials.
Décary S, de Wit M, Naye F, Barton JL, Fraenkel L, Li LC, Brooks P, Stacey D, Maxwell LJ, Campbell W, Hofstetter C, Voshaar M, Meara A, Christensen R, Boonen A, Suarez-Almazor ME, Meade T, March L, Jull JE, Alten R, Morgan EM, Stewart Hazlewood G, Barber CEH, Guillemin F, El-Miedany Y, Mittoo S, Robertson TW, Bartlett SJ, Singh JA, Mannion M, Nasef SI, Boel A, Adebajo A, Arnaud L, Gill TK, Moholt E, Burt J, Jayatilleke A, Hmamouchi I, Berthelsen DB, Blanco FJ, Mather K, Maharaj A, Sharma S, Caso F, Beaton D, Shea B, Fong C, Fernandez AP, Mackie S, Nikiphorou E, Jones A, Greer-Smith R, Sloan VS, Akpabio A, Strand V, Lee RR, Umaefulam V, Monti S, Abaza N, Schultz G, Stones S, Gossec L, Nielsen SM, Cavallo S, Srinivasalu H, Constien D, Evans V, Tugwell P, Toupin-April K. Décary S, et al. Among authors: morgan em. Semin Arthritis Rheum. 2024 Apr;65:152381. doi: 10.1016/j.semarthrit.2024.152381. Epub 2024 Jan 15. Semin Arthritis Rheum. 2024. PMID: 38306813
Toward the Development of a Core Set of Outcome Domains to Assess Shared Decision-making Interventions in Rheumatology: Results from an OMERACT Delphi Survey and Consensus Meeting.
Toupin-April K, Barton J, Fraenkel L, Li LC, Brooks P, De Wit M, Stacey D, Légaré F, Meara A, Shea B, Lyddiatt A, Hofstetter C, Gossec L, Christensen R, Scholte-Voshaar M, Suarez-Almazor ME, Boonen A, Meade T, March L, Pohl C, Jull JE, Sivarajah S, Campbell W, Alten R, Karuranga S, Morgan E, Kaufman J, Hill S, Maxwell LJ, Welch V, Beaton D, El-Miedany Y, Tugwell PS. Toupin-April K, et al. J Rheumatol. 2017 Oct;44(10):1544-1550. doi: 10.3899/jrheum.161241. Epub 2017 Aug 1. J Rheumatol. 2017. PMID: 28765239 Free PMC article.
Evidence for Updating the Core Domain Set of Outcome Measures for Juvenile Idiopathic Arthritis: Report from a Special Interest Group at OMERACT 2016.
Morgan EM, Riebschleger MP, Horonjeff J, Consolaro A, Munro JE, Thornhill S, Beukelman T, Brunner HI, Creek EL, Harris JG, Horton DB, Lovell DJ, Mannion ML, Olson JC, Rahimi H, Gallo MC, Calandra S, Ravelli A, Ringold S, Shenoi S, Stinson J, Toupin-April K, Strand V, Bingham CO 3rd. Morgan EM, et al. J Rheumatol. 2017 Dec;44(12):1884-1888. doi: 10.3899/jrheum.161389. Epub 2017 Aug 15. J Rheumatol. 2017. PMID: 28811355 Free PMC article.
OMERACT Development of a Core Domain Set of Outcomes for Shared Decision-making Interventions.
Toupin-April K, Barton JL, Fraenkel L, Meara A, Li LC, Brooks P, de Wit M, Stacey D, Légaré F, Shea B, Lyddiatt A, Hofstetter C, Christensen R, Scholte Voshaar M, Suarez-Almazor ME, Boonen A, Meade T, March L, Jull JE, Campbell W, Alten R, Karuranga S, Morgan EM, Kelly A, Kaufman J, Hill S, Maxwell LJ, Beaton D, El-Miedany Y, Mittoo S, Bartlett SJ, Singh JA, Tugwell PS. Toupin-April K, et al. Among authors: morgan em. J Rheumatol. 2019 Oct;46(10):1409-1414. doi: 10.3899/jrheum.181071. Epub 2019 Feb 1. J Rheumatol. 2019. PMID: 30709963 Free PMC article.
Establishing an Updated Core Domain Set for Studies in Juvenile Idiopathic Arthritis: A Report from the OMERACT 2018 JIA Workshop.
Morgan EM, Munro JE, Horonjeff J, Horgan B, Shea B, Feldman BM, Clairman H, Bingham CO 3rd, Thornhill S, Strand V, Alongi A, Magni-Manzoni S, van Rossum MAJ, Vesely R, Vojinovic J, Brunner HI, Harris JG, Horton DB, Lovell DJ, Mannion M, Rahimi H, Ravelli A, Ringold S, Ruperto N, Schrandt MS, Shenoi S, Shiff NJ, Toupin-April K, Tzaribachev N, Weiss P, Consolaro A. Morgan EM, et al. J Rheumatol. 2019 Aug;46(8):1006-1013. doi: 10.3899/jrheum.181088. Epub 2019 Feb 15. J Rheumatol. 2019. PMID: 30770499
Endorsement of the OMERACT core domain set for shared decision making interventions in rheumatology trials: Results from a multi-stepped consensus-building approach.
Toupin-April K, Décary S, de Wit M, Meara A, Barton JL, Fraenkel L, Li LC, Brooks P, Shea B, Stacey D, Légaré F, Lydiatt A, Hofstetter C, Proulx L, Christensen R, Voshaar M, Suarez-Almazor ME, Boonen A, Meade T, March L, Jull JE, Campbell W, Alten R, Morgan EM, Kelly A, Kaufman J, Hill S, Maxwell LJ, Guillemin F, Beaton D, El-Miedany Y, Mittoo S, Westrich Robertson T, Bartlett SJ, Singh JA, Mannion M, Nasef SI, de Souza S, Boel A, Adebajo A, Arnaud L, Gill TK, Moholt E, Burt J, Jayatilleke A, Hmamouchi I, Carrott D, Blanco FJ, Mather K, Maharaj A, Sharma S, Caso F, Fong C, Fernandez AP, Mackie S, Nikiphorou E, Jones A, Greer-Smith R, Sloan VS, Akpabio A, Strand V, Umaefulam V, Monti S, Melburn C, Abaza N, Schultz K, Stones S, Kiwalkar S, Srinivasalu H, Constien D, King LK, Tugwell P. Toupin-April K, et al. Among authors: morgan em. Semin Arthritis Rheum. 2021 Jun;51(3):593-600. doi: 10.1016/j.semarthrit.2021.03.017. Epub 2021 Apr 6. Semin Arthritis Rheum. 2021. PMID: 33892937
Pediatric Rheumatology Care and Outcomes Improvement Network's Quality Measure Set to Improve Care of Children With Juvenile Idiopathic Arthritis.
Bingham CA, Harris JG, Qiu T, Gilbert M, Vora SS, Yildirim-Toruner C, Ferraro K, Lovell DJ, Taylor J, Mannion ML, Weiss JE, Laxer RM, Shishov M, Oberle EJ, Gottlieb BS, Lee TC, Pan N, Burnham JM, Fair DC, Batthish M, Hazen MM, Spencer CH, Morgan EM; Pediatric Rheumatology Care and Outcomes Improvement Network. Bingham CA, et al. Among authors: morgan em. Arthritis Care Res (Hoboken). 2023 Dec;75(12):2442-2452. doi: 10.1002/acr.25168. Epub 2023 Jul 13. Arthritis Care Res (Hoboken). 2023. PMID: 37308458
"I'd like more options!": Interviews to explore young people and family decision-making needs for pain management in juvenile idiopathic arthritis.
Toupin-April K, Gaboury I, Proulx L, Huber AM, Duffy CM, Morgan EM, Li LC, Stringer E, Connelly M, Weiss JE, Gibbon M, Sachs H, Sivakumar A, Sirois A, Sirotich E, Trehan N, Abrahams N, Cohen JS, Cavallo S, Hindi TE, Ragusa M, Légaré F, Brinkman WB, Fortin PR, Décary S, Lee R, Gmuca S, Paterson G, Tugwell P, Stinson JN. Toupin-April K, et al. Among authors: morgan em. Pediatr Rheumatol Online J. 2023 Jul 26;21(1):74. doi: 10.1186/s12969-023-00849-0. Pediatr Rheumatol Online J. 2023. PMID: 37491246 Free PMC article.
Defining patient perception of overall well-being and disease activity in the OMERACT Juvenile Idiopathic Arthritis (JIA) core domain set: A report from the JIA working group.
Balay-Dustrude E, Christensen R, Consolaro A, Ingrid Goh Y, Gottlieb BS, Horgan B, Horonjeff J, Maxwell LJ, Munro J, Pan N, Schultz G, Swart JF, Toupin-April K, Morgan EM. Balay-Dustrude E, et al. Among authors: morgan em. Semin Arthritis Rheum. 2024 Feb;64:152340. doi: 10.1016/j.semarthrit.2023.152340. Epub 2023 Nov 30. Semin Arthritis Rheum. 2024. PMID: 38071831
86 results