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381 results

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Page 1
Stakeholder engagement: a key component of integrating genomic information into electronic health records.
Hartzler A, McCarty CA, Rasmussen LV, Williams MS, Brilliant M, Bowton EA, Clayton EW, Faucett WA, Ferryman K, Field JR, Fullerton SM, Horowitz CR, Koenig BA, McCormick JB, Ralston JD, Sanderson SC, Smith ME, Trinidad SB. Hartzler A, et al. Among authors: mccormick jb. Genet Med. 2013 Oct;15(10):792-801. doi: 10.1038/gim.2013.127. Epub 2013 Sep 12. Genet Med. 2013. PMID: 24030437 Free PMC article. Review.
Public Attitudes toward Consent and Data Sharing in Biobank Research: A Large Multi-site Experimental Survey in the US.
Sanderson SC, Brothers KB, Mercaldo ND, Clayton EW, Antommaria AHM, Aufox SA, Brilliant MH, Campos D, Carrell DS, Connolly J, Conway P, Fullerton SM, Garrison NA, Horowitz CR, Jarvik GP, Kaufman D, Kitchner TE, Li R, Ludman EJ, McCarty CA, McCormick JB, McManus VD, Myers MF, Scrol A, Williams JL, Shrubsole MJ, Schildcrout JS, Smith ME, Holm IA. Sanderson SC, et al. Among authors: mccormick jb. Am J Hum Genet. 2017 Mar 2;100(3):414-427. doi: 10.1016/j.ajhg.2017.01.021. Epub 2017 Feb 9. Am J Hum Genet. 2017. PMID: 28190457 Free PMC article. Clinical Trial.
Conducting a large, multi-site survey about patients' views on broad consent: challenges and solutions.
Smith ME, Sanderson SC, Brothers KB, Myers MF, McCormick J, Aufox S, Shrubsole MJ, Garrison NA, Mercaldo ND, Schildcrout JS, Clayton EW, Antommaria AH, Basford M, Brilliant M, Connolly JJ, Fullerton SM, Horowitz CR, Jarvik GP, Kaufman D, Kitchner T, Li R, Ludman EJ, McCarty C, McManus V, Stallings S, Williams JL, Holm IA. Smith ME, et al. BMC Med Res Methodol. 2016 Nov 24;16(1):162. doi: 10.1186/s12874-016-0263-7. BMC Med Res Methodol. 2016. PMID: 27881091 Free PMC article.
When Participants in Genomic Research Grow Up: Contact and Consent at the Age of Majority.
Brothers KB, Holm IA, Childerhose JE, Antommaria AHM, Bernhardt BA, Clayton EW, Gelb BD, Joffe S, Lynch JA, McCormick JB, McCullough LB, Parsons DW, Sundaresan AS, Wolf WA, Yu JH, Wilfond BS; Pediatrics Workgroup of the Clinical Sequencing Exploratory Research (CSER) Consortium. Brothers KB, et al. Among authors: mccormick jb. J Pediatr. 2016 Jan;168:226-231.e1. doi: 10.1016/j.jpeds.2015.09.020. Epub 2015 Oct 23. J Pediatr. 2016. PMID: 26477867 Free PMC article. No abstract available.
Enrichment sampling for a multi-site patient survey using electronic health records and census data.
Mercaldo ND, Brothers KB, Carrell DS, Clayton EW, Connolly JJ, Holm IA, Horowitz CR, Jarvik GP, Kitchner TE, Li R, McCarty CA, McCormick JB, McManus VD, Myers MF, Pankratz JJ, Shrubsole MJ, Smith ME, Stallings SC, Williams JL, Schildcrout JS. Mercaldo ND, et al. Among authors: mccormick jb. J Am Med Inform Assoc. 2019 Mar 1;26(3):219-227. doi: 10.1093/jamia/ocy164. J Am Med Inform Assoc. 2019. PMID: 30590688 Free PMC article.
Parents' attitudes toward consent and data sharing in biobanks: A multisite experimental survey.
Antommaria AHM, Brothers KB, Myers JA, Feygin YB, Aufox SA, Brilliant MH, Conway P, Fullerton SM, Garrison NA, Horowitz CR, Jarvik GP, Li R, Ludman EJ, McCarty CA, McCormick JB, Mercaldo ND, Myers MF, Sanderson SC, Shrubsole MJ, Schildcrout JS, Williams JL, Smith ME, Clayton EW, Holm IA. Antommaria AHM, et al. Among authors: mccormick jb. AJOB Empir Bioeth. 2018 Jul-Sep;9(3):128-142. doi: 10.1080/23294515.2018.1505783. Epub 2018 Sep 21. AJOB Empir Bioeth. 2018. PMID: 30240342 Free PMC article. Clinical Trial.
Practical guidance on informed consent for pediatric participants in a biorepository.
Brothers KB, Lynch JA, Aufox SA, Connolly JJ, Gelb BD, Holm IA, Sanderson SC, McCormick JB, Williams JL, Wolf WA, Antommaria AH, Clayton EW. Brothers KB, et al. Among authors: mccormick jb. Mayo Clin Proc. 2014 Nov;89(11):1471-80. doi: 10.1016/j.mayocp.2014.07.006. Epub 2014 Sep 26. Mayo Clin Proc. 2014. PMID: 25264176 Free PMC article. No abstract available.
The Responsibility to Recontact Research Participants after Reinterpretation of Genetic and Genomic Research Results.
Bombard Y, Brothers KB, Fitzgerald-Butt S, Garrison NA, Jamal L, James CA, Jarvik GP, McCormick JB, Nelson TN, Ormond KE, Rehm HL, Richer J, Souzeau E, Vassy JL, Wagner JK, Levy HP. Bombard Y, et al. Among authors: mccormick jb. Am J Hum Genet. 2019 Apr 4;104(4):578-595. doi: 10.1016/j.ajhg.2019.02.025. Am J Hum Genet. 2019. PMID: 30951675 Free PMC article.
381 results