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Emerging good practices for Translatability Assessment (TA) of Patient-Reported Outcome (PRO) measures.
Acquadro C, Patrick DL, Eremenco S, Martin ML, Kuliś D, Correia H, Conway K; International Society for Quality of Life Research (ISOQOL) Translation and Cultural Adaptation Special Interest Group (TCA-SIG). Acquadro C, et al. J Patient Rep Outcomes. 2017;2(1):8. doi: 10.1186/s41687-018-0035-8. Epub 2018 Feb 21. J Patient Rep Outcomes. 2017. PMID: 29757337 Free PMC article. Review.
Reflection paper on copyright, patient-reported outcome instruments and their translations.
Anfray C, Arnold B, Martin M, Eremenco S, Patrick DL, Conway K, Acquadro C; ISOQOL Translation and Cultural Special Interest Group (TCA-SIG). Anfray C, et al. Among authors: martin m. Health Qual Life Outcomes. 2018 Dec 5;16(1):224. doi: 10.1186/s12955-018-1050-4. Health Qual Life Outcomes. 2018. PMID: 30518380 Free PMC article.
Principles of Good Practice for the Translation and Cultural Adaptation Process for Patient-Reported Outcomes (PRO) Measures: report of the ISPOR Task Force for Translation and Cultural Adaptation.
Wild D, Grove A, Martin M, Eremenco S, McElroy S, Verjee-Lorenz A, Erikson P; ISPOR Task Force for Translation and Cultural Adaptation. Wild D, et al. Among authors: martin m. Value Health. 2005 Mar-Apr;8(2):94-104. doi: 10.1111/j.1524-4733.2005.04054.x. Value Health. 2005. PMID: 15804318 Free article.
Multinational trials-recommendations on the translations required, approaches to using the same language in different countries, and the approaches to support pooling the data: the ISPOR Patient-Reported Outcomes Translation and Linguistic Validation Good Research Practices Task Force report.
Wild D, Eremenco S, Mear I, Martin M, Houchin C, Gawlicki M, Hareendran A, Wiklund I, Chong LY, von Maltzahn R, Cohen L, Molsen E. Wild D, et al. Among authors: martin m. Value Health. 2009 Jun;12(4):430-40. doi: 10.1111/j.1524-4733.2008.00471.x. Epub 2008 Nov 12. Value Health. 2009. PMID: 19138309 Free article.
Measuring health-related quality of life in patients with rare disease.
Lenderking WR, Anatchkova M, Pokrzywinski R, Skalicky A, Martin ML, Gelhorn H. Lenderking WR, et al. Among authors: martin ml. J Patient Rep Outcomes. 2021 Jul 20;5(1):61. doi: 10.1186/s41687-021-00336-8. J Patient Rep Outcomes. 2021. PMID: 34283357 Free PMC article.
Content validity--establishing and reporting the evidence in newly developed patient-reported outcomes (PRO) instruments for medical product evaluation: ISPOR PRO good research practices task force report: part 1--eliciting concepts for a new PRO instrument.
Patrick DL, Burke LB, Gwaltney CJ, Leidy NK, Martin ML, Molsen E, Ring L. Patrick DL, et al. Value Health. 2011 Dec;14(8):967-77. doi: 10.1016/j.jval.2011.06.014. Epub 2011 Oct 13. Value Health. 2011. PMID: 22152165 Free article.
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