Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation

Search Page

Filters

My NCBI Filters

Text availability

Article attribute

Article type

Publication date

Search Results

275 results

Filters applied: . Clear all
Results are displayed in a computed author sort order. The Results By Year timeline is not available.
Page 1
Recommendations for Improving the Quality of Rare Disease Registries.
Kodra Y, Weinbach J, Posada-de-la-Paz M, Coi A, Lemonnier SL, van Enckevort D, Roos M, Jacobsen A, Cornet R, Ahmed SF, Bros-Facer V, Popa V, Van Meel M, Renault D, von Gizycki R, Santoro M, Landais P, Torreri P, Carta C, Mascalzoni D, Gainotti S, Lopez E, Ambrosini A, Müller H, Reis R, Bianchi F, Rubinstein YR, Lochmüller H, Taruscio D. Kodra Y, et al. Among authors: landais p. Int J Environ Res Public Health. 2018 Aug 3;15(8):1644. doi: 10.3390/ijerph15081644. Int J Environ Res Public Health. 2018. PMID: 30081484 Free PMC article.
RaDiCo, the French national research program on rare disease cohorts.
Amselem S, Gueguen S, Weinbach J, Clement A, Landais P; RaDiCo Program. Amselem S, et al. Among authors: landais p. Orphanet J Rare Dis. 2021 Oct 29;16(1):454. doi: 10.1186/s13023-021-02089-5. Orphanet J Rare Dis. 2021. PMID: 34715889 Free PMC article.
Federating patients identities: the case of rare diseases.
Maaroufi M, Landais P, Messiaen C, Jaulent MC, Choquet R. Maaroufi M, et al. Among authors: landais p. Orphanet J Rare Dis. 2018 Nov 12;13(1):199. doi: 10.1186/s13023-018-0948-6. Orphanet J Rare Dis. 2018. PMID: 30419918 Free PMC article.
CEMARA an information system for rare diseases.
Landais P, Messiaen C, Rath A, Le Mignot L, Dufour E, Ben Said M, Jais JP, Toubiana L, Baujat G, Bourdon-Lanoy E, Gérard-Blanluet M, Bodemer C, Salomon R, Aymé S, Le Merrer M, Verloes A; CEMARA task force. Landais P, et al. Stud Health Technol Inform. 2010;160(Pt 1):481-5. Stud Health Technol Inform. 2010. PMID: 20841733
[Electronic health records and biomedical research].
Daniel C, Jais JP, El Fadly N, Landais P. Daniel C, et al. Among authors: landais p. Presse Med. 2009 Oct;38(10):1468-75. doi: 10.1016/j.lpm.2009.06.009. Epub 2009 Sep 18. Presse Med. 2009. PMID: 19766440 French.
275 results