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Page 1
Ethics and legal requirements for data linkage in 14 European countries for children with congenital anomalies.
Claridge H, Tan J, Loane M, Garne E, Barisic I, Cavero-Carbonell C, Dias C, Gatt M, Jordan S, Khoshnood B, Kiuru-Kuhlefelt S, Klungsoyr K, Mokoroa Carollo O, Nelen V, Neville AJ, Pierini A, Randrianaivo H, Rissmann A, Tucker D, de Walle H, Wertelecki W, Morris JK. Claridge H, et al. Among authors: kiuru kuhlefelt s. BMJ Open. 2023 Jul 27;13(7):e071687. doi: 10.1136/bmjopen-2023-071687. BMJ Open. 2023. PMID: 37500278 Free PMC article. Review.
Hypospadias Prevalence and Trends in International Birth Defect Surveillance Systems, 1980-2010.
Yu X, Nassar N, Mastroiacovo P, Canfield M, Groisman B, Bermejo-Sánchez E, Ritvanen A, Kiuru-Kuhlefelt S, Benavides A, Sipek A, Pierini A, Bianchi F, Källén K, Gatt M, Morgan M, Tucker D, Canessa MA, Gajardo R, Mutchinick OM, Szabova E, Csáky-Szunyogh M, Tagliabue G, Cragan JD, Nembhard WN, Rissmann A, Goetz D, Bower C, Baynam G, Lowry RB, Leon JA, Luo W, Rouleau J, Zarante I, Fernandez N, Amar E, Dastgiri S, Contiero P, Martínez-de-Villarreal LE, Borman B, Bergman JEH, de Walle HEK, Hobbs CA, Nance AE, Agopian AJ. Yu X, et al. Eur Urol. 2019 Oct;76(4):482-490. doi: 10.1016/j.eururo.2019.06.027. Epub 2019 Jul 9. Eur Urol. 2019. PMID: 31300237 Free PMC article.
EUROlinkCAT protocol for a European population-based data linkage study investigating the survival, morbidity and education of children with congenital anomalies.
Morris JK, Garne E, Loane M, Barisic I, Densem J, Latos-Bieleńska A, Neville A, Pierini A, Rankin J, Rissmann A, de Walle H, Tan J, Given JE, Claridge H; EUROlinkCAT Consortium. Morris JK, et al. BMJ Open. 2021 Jun 28;11(6):e047859. doi: 10.1136/bmjopen-2020-047859. BMJ Open. 2021. PMID: 34183346 Free PMC article.
Prevention of Neural Tube Defects in Europe: A Public Health Failure.
Morris JK, Addor MC, Ballardini E, Barisic I, Barrachina-Bonet L, Braz P, Cavero-Carbonell C, Den Hond E, Garne E, Gatt M, Haeusler M, Khoshnood B, Lelong N, Kinsner-Ovaskainen A, Kiuru-Kuhlefelt S, Klungsoyr K, Latos-Bielenska A, Limb E, O'Mahony MT, Perthus I, Pierini A, Rankin J, Rissmann A, Rouget F, Sayers G, Sipek A Jr, Stevens S, Tucker D, Verellen-Dumoulin C, de Walle HEK, Wellesley D, Wertelecki W, Bermejo-Sanchez E. Morris JK, et al. Among authors: kiuru kuhlefelt s. Front Pediatr. 2021 Jun 24;9:647038. doi: 10.3389/fped.2021.647038. eCollection 2021. Front Pediatr. 2021. PMID: 34249803 Free PMC article.
Linking a European cohort of children born with congenital anomalies to vital statistics and mortality records: A EUROlinkCAT study.
Loane M, Given JE, Tan J, Reid A, Akhmedzhanova D, Astolfi G, Barišić I, Bertille N, Bonet LB, Carbonell CC, Carollo OM, Coi A, Densem J, Draper E, Garne E, Gatt M, Glinianaia SV, Heino A, Hond ED, Jordan S, Khoshnood B, Kiuru-Kuhlefelt S, Klungsøyr K, Lelong N, Lutke LR, Neville AJ, Ostapchuk L, Puccini A, Rissmann A, Santoro M, Scanlon I, Thys G, Tucker D, Urhoj SK, de Walle HEK, Wellesley D, Zurriaga O, Morris JK. Loane M, et al. Among authors: kiuru kuhlefelt s. PLoS One. 2021 Aug 27;16(8):e0256535. doi: 10.1371/journal.pone.0256535. eCollection 2021. PLoS One. 2021. PMID: 34449798 Free PMC article.
Survival of children with rare structural congenital anomalies: a multi-registry cohort study.
Coi A, Santoro M, Pierini A, Rankin J, Glinianaia SV, Tan J, Reid AK, Garne E, Loane M, Given J, Ballardini E, Cavero-Carbonell C, de Walle HEK, Gatt M, García-Villodre L, Gissler M, Jordan S, Kiuru-Kuhlefelt S, Kjaer Urhoj S, Klungsøyr K, Lelong N, Lutke LR, Neville AJ, Rahshenas M, Scanlon I, Wellesley D, Morris JK. Coi A, et al. Among authors: kiuru kuhlefelt s. Orphanet J Rare Dis. 2022 Mar 29;17(1):142. doi: 10.1186/s13023-022-02292-y. Orphanet J Rare Dis. 2022. PMID: 35351164 Free PMC article.
Prescription of cardiovascular medication in children with congenital heart defects across six European Regions from 2000 to 2014: data from the EUROlinkCAT population-based cohort study.
Damkjaer M, Urhoj SK, Tan J, Briggs G, Loane M, Given JE, Barrachina-Bonet L, Cavero-Carbonell C, Coi A, Neville AJ, Heino A, Kiuru-Kuhlefelt S, Jordan S, Scanlon I, Pierini A, Puccini A, Garne E, Morris JK. Damkjaer M, et al. Among authors: kiuru kuhlefelt s. BMJ Open. 2022 Apr 21;12(4):e057400. doi: 10.1136/bmjopen-2021-057400. BMJ Open. 2022. PMID: 35450908 Free PMC article.
Temporal and geographical variations in survival of children born with congenital anomalies in Europe: A multi-registry cohort study.
Santoro M, Coi A, Pierini A, Rankin J, Glinianaia SV, Tan J, Reid A, Garne E, Loane M, Given J, Aizpurua A, Astolfi G, Barisic I, Cavero-Carbonell C, de Walle HEK, Den Hond E, García-Villodre L, Gatt M, Gissler M, Jordan S, Khoshnood B, Kiuru-Kuhlefelt S, Klungsøyr K, Lelong N, Lutke R, Mokoroa O, Nelen V, Neville AJ, Odak L, Rissmann A, Scanlon I, Urhoj SK, Wellesley D, Wertelecki W, Yevtushok L, Morris JK. Santoro M, et al. Among authors: kiuru kuhlefelt s. Paediatr Perinat Epidemiol. 2022 Nov;36(6):792-803. doi: 10.1111/ppe.12884. Epub 2022 Jun 8. Paediatr Perinat Epidemiol. 2022. PMID: 35675091 Free PMC article.
The Association of Prenatal Diagnoses with Mortality and Long-Term Morbidity in Children with Specific Isolated Congenital Anomalies: A European Register-Based Cohort Study.
Heino A, Morris JK, Garne E, Baldacci S, Barisic I, Cavero-Carbonell C, García-Villodre L, Given J, Jordan S, Loane M, Lutke LR, Neville AJ, Santoro M, Scanlon I, Tan J, de Walle HEK, Kiuru-Kuhlefelt S, Gissler M. Heino A, et al. Among authors: kiuru kuhlefelt s. Matern Child Health J. 2024 Jun;28(6):1020-1030. doi: 10.1007/s10995-024-03911-9. Epub 2024 Mar 4. Matern Child Health J. 2024. PMID: 38438690 Free PMC article.
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