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The Clinical Sequencing Evidence-Generating Research Consortium: Integrating Genomic Sequencing in Diverse and Medically Underserved Populations.
Amendola LM, Berg JS, Horowitz CR, Angelo F, Bensen JT, Biesecker BB, Biesecker LG, Cooper GM, East K, Filipski K, Fullerton SM, Gelb BD, Goddard KAB, Hailu B, Hart R, Hassmiller-Lich K, Joseph G, Kenny EE, Koenig BA, Knight S, Kwok PY, Lewis KL, McGuire AL, Norton ME, Ou J, Parsons DW, Powell BC, Risch N, Robinson M, Rini C, Scollon S, Slavotinek AM, Veenstra DL, Wasserstein MP, Wilfond BS, Hindorff LA; CSER consortium; Plon SE, Jarvik GP. Amendola LM, et al. Among authors: joseph g. Am J Hum Genet. 2018 Sep 6;103(3):319-327. doi: 10.1016/j.ajhg.2018.08.007. Am J Hum Genet. 2018. PMID: 30193136 Free PMC article.
Integrating stakeholder feedback in translational genomics research: an ethnographic analysis of a study protocol's evolution.
Kraft SA, McMullen C, Lindberg NM, Bui D, Shipman K, Anderson K, Joseph G, Duenas DM, Porter KM, Kauffman TL, Koomas A, Ransom CL, Jackson P, Goddard KAB, Wilfond BS, Lee SS. Kraft SA, et al. Among authors: joseph g. Genet Med. 2020 Jun;22(6):1094-1101. doi: 10.1038/s41436-020-0763-z. Epub 2020 Feb 24. Genet Med. 2020. PMID: 32089547 Free PMC article.
Participant Reactions to a Literacy-Focused, Web-Based Informed Consent Approach for a Genomic Implementation Study.
Kraft SA, Porter KM, Duenas DM, Guerra C, Joseph G, Lee SS, Shipman KJ, Allen J, Eubanks D, Kauffman TL, Lindberg NM, Anderson K, Zepp JM, Gilmore MJ, Mittendorf KF, Shuster E, Muessig KR, Arnold B, Goddard KAB, Wilfond BS. Kraft SA, et al. Among authors: joseph g. AJOB Empir Bioeth. 2021 Jan-Mar;12(1):1-11. doi: 10.1080/23294515.2020.1823907. Epub 2020 Sep 26. AJOB Empir Bioeth. 2021. PMID: 32981477 Free PMC article.
A review and definition of 'usual care' in genetic counseling trials to standardize use in research.
Biesecker BB, Lillie SE, Amendola LM, Donohue KE, East KM, Foreman AKM, Gilmore MJ, Greve V, Liangolou B, O'Daniel JM, Odgis JA, Rego S, Rolf B, Scollon S, Suckiel SA, Zepp J, Joseph G. Biesecker BB, et al. Among authors: joseph g. J Genet Couns. 2021 Feb;30(1):42-50. doi: 10.1002/jgc4.1363. Epub 2020 Dec 5. J Genet Couns. 2021. PMID: 33278053 Free PMC article. Review.
Development and early implementation of an Accessible, Relational, Inclusive and Actionable approach to genetic counseling: The ARIA model.
Riddle L, Amendola LM, Gilmore MJ, Guerra C, Biesecker B, Kauffman TL, Anderson K, Rope AF, Leo MC, Caruncho M, Jarvik GP, Wilfond B, Goddard KAB, Joseph G. Riddle L, et al. Among authors: joseph g. Patient Educ Couns. 2021 May;104(5):969-978. doi: 10.1016/j.pec.2020.12.017. Epub 2020 Dec 23. Patient Educ Couns. 2021. PMID: 33549385 Free PMC article.
Genomic Sequencing Results Disclosure in Diverse and Medically Underserved Populations: Themes, Challenges, and Strategies from the CSER Consortium.
Suckiel SA, O'Daniel JM, Donohue KE, Gallagher KM, Gilmore MJ, Hendon LG, Joseph G, Lianoglou BR, Mathews JM, Norton ME, Odgis JA, Poss AF, Rego S, Scollon S, Yip T, Amendola LM. Suckiel SA, et al. Among authors: joseph g. J Pers Med. 2021 Mar 13;11(3):202. doi: 10.3390/jpm11030202. J Pers Med. 2021. PMID: 33805616 Free PMC article.
Lessons learned about harmonizing survey measures for the CSER consortium.
Goddard KAB, Angelo FAN, Ackerman SL, Berg JS, Biesecker BB, Danila MI, East KM, Hindorff LA, Horowitz CR, Hunter JE, Joseph G, Knight SJ, McGuire A, Muessig KR, Ou J, Outram S, Rahn EJ, Ramos MA, Rini C, Robinson JO, Smith HS, Waltz M, Lee SS. Goddard KAB, et al. Among authors: joseph g. J Clin Transl Sci. 2020 Apr 24;4(6):537-546. doi: 10.1017/cts.2020.41. J Clin Transl Sci. 2020. PMID: 33948230 Free PMC article.
Cancer Health Assessments Reaching Many (CHARM): A clinical trial assessing a multimodal cancer genetics services delivery program and its impact on diverse populations.
Mittendorf KF, Kauffman TL, Amendola LM, Anderson KP, Biesecker BB, Dorschner MO, Duenas DM, Eubanks DJ, Feigelson HS, Gilmore MJ, Hunter JE, Joseph G, Kraft SA, Lee SSJ, Leo MC, Liles EG, Lindberg NM, Muessig KR, Okuyama S, Porter KM, Riddle LS, Rolf BA, Rope AF, Zepp JM, Jarvik GP, Wilfond BS, Goddard KAB; CHARM study team. Mittendorf KF, et al. Among authors: joseph g. Contemp Clin Trials. 2021 Jul;106:106432. doi: 10.1016/j.cct.2021.106432. Epub 2021 May 11. Contemp Clin Trials. 2021. PMID: 33984519 Free PMC article. Clinical Trial.
875 results