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Page 1
Country Reports.
Zawati MH, Chalmers D, Dallari SG, de Neiva Borba M, Pinkesz M, Joly Y, Chen H, Hartlev M, Leitsalu L, Soini S, Rial-Sebbag E, Hoppe N, Garani-Papadatos T, Vidalis P, Srinivas KR, Siegal G, Negri S, Hatanaka R, Al-Hussaini M, Al-Tabba' A, Motta-Murgía L, Moran LET, Hendriks A, Nnamuchi O, Isasi R, Krekora-Zajac D, Sadoun E, Ho C, Andanda P, Lee WB, Nicolás P, Mattsson T, Talanova V, Dosch A, Sprumont D, Fan CT, Hung TH, Nnamuchi O, Kaye J, Phillips A, Gowans H, Shah N, Hazel JW. Zawati MH, et al. J Law Med Ethics. 2019 Dec;47(4):582-704. doi: 10.1177/1073110519897736. J Law Med Ethics. 2019. PMID: 31957584 No abstract available.
Genetic discrimination: introducing the Asian perspective to the debate.
Kim H, Ho CWL, Ho CH, Athira PS, Kato K, De Castro L, Kang H, Huxtable R, Zwart H, Ives J, Lee I, Joly Y, Kim SY. Kim H, et al. NPJ Genom Med. 2021 Jul 1;6(1):54. doi: 10.1038/s41525-021-00218-4. NPJ Genom Med. 2021. PMID: 34210984 Free PMC article. Review.
Establishing the International Genetic Discrimination Observatory.
Joly Y, Dalpé G, Dupras C, Bévière-Boyer B, de Paor A, Dove ES, Granados Moreno P, Ho CWL, Ho CH, Ó Cathaoir K, Kato K, Kim H, Song L, Minssen T, Nicolás P, Otlowski M, Prince AER, P S Nair A, Van Hoyweghen I, Voigt TH, Yamasaki C, Bombard Y. Joly Y, et al. Nat Genet. 2020 May;52(5):466-468. doi: 10.1038/s41588-020-0606-5. Nat Genet. 2020. PMID: 32203466 No abstract available.
The Genetic Discrimination Observatory: confronting novel issues in genetic discrimination.
Joly Y, Huerne K, Arych M, Bombard Y, De Paor A, Dove ES, Granados Moreno P, Ho CWL, Ho CH, Van Hoyweghen I, Kim H, Lebret A, Minssen T, Ó Cathaoir K, Prince AER, Nair APS, Otlowski M, Pepper MS, Sladek R, Song L, Voigt TH, Zawati MH, Dalpé G; Genetic Discrimination Observatory (GDO). Joly Y, et al. Trends Genet. 2021 Nov;37(11):951-954. doi: 10.1016/j.tig.2021.08.004. Epub 2021 Sep 6. Trends Genet. 2021. PMID: 34503867
GA4GH: International policies and standards for data sharing across genomic research and healthcare.
Rehm HL, Page AJH, Smith L, Adams JB, Alterovitz G, Babb LJ, Barkley MP, Baudis M, Beauvais MJS, Beck T, Beckmann JS, Beltran S, Bernick D, Bernier A, Bonfield JK, Boughtwood TF, Bourque G, Bowers SR, Brookes AJ, Brudno M, Brush MH, Bujold D, Burdett T, Buske OJ, Cabili MN, Cameron DL, Carroll RJ, Casas-Silva E, Chakravarty D, Chaudhari BP, Chen SH, Cherry JM, Chung J, Cline M, Clissold HL, Cook-Deegan RM, Courtot M, Cunningham F, Cupak M, Davies RM, Denisko D, Doerr MJ, Dolman LI, Dove ES, Dursi LJ, Dyke SOM, Eddy JA, Eilbeck K, Ellrott KP, Fairley S, Fakhro KA, Firth HV, Fitzsimons MS, Fiume M, Flicek P, Fore IM, Freeberg MA, Freimuth RR, Fromont LA, Fuerth J, Gaff CL, Gan W, Ghanaim EM, Glazer D, Green RC, Griffith M, Griffith OL, Grossman RL, Groza T, Auvil JMG, Guigó R, Gupta D, Haendel MA, Hamosh A, Hansen DP, Hart RK, Hartley DM, Haussler D, Hendricks-Sturrup RM, Ho CWL, Hobb AE, Hoffman MM, Hofmann OM, Holub P, Hsu JS, Hubaux JP, Hunt SE, Husami A, Jacobsen JO, Jamuar SS, Janes EL, Jeanson F, Jené A, Johns AL, Joly Y, Jones SJM, Kanitz A, Kato K, Keane TM, Kekesi-Lafrance K, Kelleher J, Kerry G, Khor SS, Knoppers BM, Konopko MA, Kosaki K, Kuba M, Lawson J, Leinonen R, Li S… See abstract for full author list ➔ Rehm HL, et al. Cell Genom. 2021 Nov 10;1(2):100029. doi: 10.1016/j.xgen.2021.100029. Cell Genom. 2021. PMID: 35072136 Free PMC article.
Streamlining ethics review for international health research.
Rothstein MA, Zawati MH, Thorogood A, Beauvais MJS, Joly Y, Brothers KB, Lang M, Andanda P, Ho C, Isasi R, Kaye J, Lee WB, Nnamuchi O, Saltzman A, Knoppers BM. Rothstein MA, et al. Science. 2022 Feb 25;375(6583):825-826. doi: 10.1126/science.abn0675. Epub 2022 Feb 24. Science. 2022. PMID: 35201881
Involving Families and Children in Online Research.
Ho CWL, Wright K, Caals K. Ho CWL, et al. Am J Bioeth. 2019 Jun;19(6):68-71. doi: 10.1080/15265161.2019.1602184. Am J Bioeth. 2019. PMID: 31135309 No abstract available.
203 results