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The EuRRECa Project as a Model for Data Access and Governance Policies for Rare Disease Registries That Collect Clinical Outcomes.
Ali SR, Bryce J, Tan LE, Hiort O, Pereira AM, van den Akker ELT, Appelman-Dijkstra NM, Bertherat J, Cools M, Dekkers OM, Kodra Y, Persani L, Smyth A, Smythe C, Taruscio D, Ahmed SF. Ali SR, et al. Among authors: hiort o. Int J Environ Res Public Health. 2020 Nov 25;17(23):8743. doi: 10.3390/ijerph17238743. Int J Environ Res Public Health. 2020. PMID: 33255540 Free PMC article. Review.
Introduction to Endo-ERN-scope and mission.
Pereira AM, Hiort O. Pereira AM, et al. Among authors: hiort o. Endocrine. 2021 Mar;71(3):537-538. doi: 10.1007/s12020-020-02602-z. Epub 2021 Jan 15. Endocrine. 2021. PMID: 33449294 Free PMC article.
The current landscape of European registries for rare endocrine conditions.
Ali SR, Bryce J, Cools M, Korbonits M, Beun JG, Taruscio D, Danne T, Dattani M, Dekkers OM, Linglart A, Netchine I, Nordenstrom A, Patocs A, Persani L, Reisch N, Smyth A, Sumnik Z, Visser WE, Hiort O, Pereira AM, Ahmed SF. Ali SR, et al. Among authors: hiort o. Eur J Endocrinol. 2019 Jan 1;180(1):89-98. doi: 10.1530/EJE-18-0861. Eur J Endocrinol. 2019. PMID: 30407922 Free PMC article.
Addressing gaps in care of people with conditions affecting sex development and maturation.
Hiort O, Cools M, Springer A, McElreavey K, Greenfield A, Wudy SA, Kulle A, Ahmed SF, Dessens A, Balsamo A, Maghnie M, Bonomi M, Dattani M, Persani L, Audi L; COST Actions DSDnet and GnRH Network as well as the European Reference Network for Rare Endocrine Conditions (Endo–ERN). Hiort O, et al. Nat Rev Endocrinol. 2019 Oct;15(10):615-622. doi: 10.1038/s41574-019-0238-y. Epub 2019 Aug 12. Nat Rev Endocrinol. 2019. PMID: 31406344 Free article. Review.
CPMS-improving patient care in Europe via virtual case discussions.
Mönig I, Steenvoorden D, de Graaf JP, Ahmed SF, Taruscio D, Beun JG, Johannsen TH, Juul A, Hiort O, Pereira AM. Mönig I, et al. Among authors: hiort o. Endocrine. 2021 Mar;71(3):549-554. doi: 10.1007/s12020-021-02628-x. Epub 2021 Feb 2. Endocrine. 2021. PMID: 33528763 Free PMC article. Review.
Standardised data collection for clinical follow-up and assessment of outcomes in differences of sex development (DSD): recommendations from the COST action DSDnet.
Flück C, Nordenström A, Ahmed SF, Ali SR, Berra M, Hall J, Köhler B, Pasterski V, Robeva R, Schweizer K, Springer A, Westerveld P, Hiort O, Cools M. Flück C, et al. Among authors: hiort o. Eur J Endocrinol. 2019 Nov;181(5):545-564. doi: 10.1530/EJE-19-0363. Eur J Endocrinol. 2019. PMID: 31539875
259 results