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Twenty years of the Fabry Outcome Survey (FOS): insights, achievements, and lessons learned from a global patient registry.
Beck M, Ramaswami U, Hernberg-Ståhl E, Hughes DA, Kampmann C, Mehta AB, Nicholls K, Niu DM, Pintos-Morell G, Reisin R, West ML, Schenk J, Anagnostopoulou C, Botha J, Giugliani R. Beck M, et al. Among authors: hernberg stahl e. Orphanet J Rare Dis. 2022 Jun 20;17(1):238. doi: 10.1186/s13023-022-02392-9. Orphanet J Rare Dis. 2022. PMID: 35725623 Free PMC article. Review.
Ten years of the Hunter Outcome Survey (HOS): insights, achievements, and lessons learned from a global patient registry.
Muenzer J, Jones SA, Tylki-Szymańska A, Harmatz P, Mendelsohn NJ, Guffon N, Giugliani R, Burton BK, Scarpa M, Beck M, Jangelind Y, Hernberg-Stahl E, Larsen MP, Pulles T, Whiteman DAH. Muenzer J, et al. Among authors: hernberg stahl e. Orphanet J Rare Dis. 2017 May 2;12(1):82. doi: 10.1186/s13023-017-0635-z. Orphanet J Rare Dis. 2017. PMID: 28464912 Free PMC article. Review.
Healthcare consumption decreases in parallel with improvements in quality of life during GH replacement in hypopituitary adults with GH deficiency.
Hernberg-Ståhl E, Luger A, Abs R, Bengtsson BA, Feldt-Rasmussen U, Wilton P, Westberg B, Monson JP; KIMS International Board; KIMS Study Group. Pharmacia International Metabolic Database. Hernberg-Ståhl E, et al. J Clin Endocrinol Metab. 2001 Nov;86(11):5277-81. doi: 10.1210/jcem.86.11.7997. J Clin Endocrinol Metab. 2001. PMID: 11701692
Growth hormone deficiency and replacement in hypopituitary patients previously treated for acromegaly or Cushing's disease.
Feldt-Rasmussen U, Abs R, Bengtsson BA, Bennmarker H, Bramnert M, Hernberg-Ståhl E, Monson JP, Westberg B, Wilton P, Wüster C; KIMS International Study Board of KIMS Study Group. Feldt-Rasmussen U, et al. Among authors: hernberg stahl e. Eur J Endocrinol. 2002 Jan;146(1):67-74. doi: 10.1530/eje.0.1460067. Eur J Endocrinol. 2002. PMID: 11751070
The effects of treatment and the individual responsiveness to growth hormone (GH) replacement therapy in 665 GH-deficient adults. KIMS Study Group and the KIMS International Board.
Bengtsson BA, Abs R, Bennmarker H, Monson JP, Feldt-Rasmussen U, Hernberg-Stahl E, Westberg B, Wilton P, Wüster C. Bengtsson BA, et al. Among authors: hernberg stahl e. J Clin Endocrinol Metab. 1999 Nov;84(11):3929-35. doi: 10.1210/jcem.84.11.6088. J Clin Endocrinol Metab. 1999. PMID: 10566630
Growth hormone deficiency and replacement in elderly hypopituitary adults. KIMS Study Group and the KIMS International Board. Pharmacia and Upjohn International Metabolic Database.
Monson JP, Abs R, Bengtsson BA, Bennmarker H, Feldt-Rasmussen U, Hernberg-Stâhl E, Thorén M, Westberg B, Wilton P, Wüster C. Monson JP, et al. Among authors: hernberg stahl e. Clin Endocrinol (Oxf). 2000 Sep;53(3):281-9. doi: 10.1046/j.1365-2265.2000.01104.x. Clin Endocrinol (Oxf). 2000. PMID: 10971444
The influence of growth hormone deficiency, growth hormone replacement therapy, and other aspects of hypopituitarism on fracture rate and bone mineral density.
Wüster C, Abs R, Bengtsson BA, Bennmarker H, Feldt-Rasmussen U, Hernberg-Ståhl E, Monson JP, Westberg B, Wilton P; KIMS Study Group and the KIMS International Board. Pharmacia & Upjohn International Metabolic Database. Wüster C, et al. Among authors: hernberg stahl e. J Bone Miner Res. 2001 Feb;16(2):398-405. doi: 10.1359/jbmr.2001.16.2.398. J Bone Miner Res. 2001. PMID: 11204440 Free article.
11 results