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Year Number of Results
2019 3
2020 5
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2022 3
2023 6
2024 5

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Page 1
Validity, Reliability, and Differential Item Functioning of English and French Versions of the 10-Item Connor-Davidson Resilience Scale in Systemic Sclerosis: A Scleroderma Patient-Centered Intervention Network Cohort Study.
Neyer MA, Henry RS, Carrier ME, Kwakkenbos L, Wojeck RK, Gietzen A, Gottesman K, Guillot G, Lawrie-Jones A, Mayes MD, Mouthon L, Nielson WR, Richard M, Worron-Sauvé M, Harel D, Malcarne VL, Bartlett SJ, Thombs BD; SPIN Investigators. Neyer MA, et al. Among authors: gietzen a. Arthritis Care Res (Hoboken). 2023 Nov;75(11):2369-2378. doi: 10.1002/acr.25139. Epub 2023 Jun 7. Arthritis Care Res (Hoboken). 2023. PMID: 37128826
Patterns of patient-reported symptoms and association with sociodemographic and systemic sclerosis disease characteristics: a scleroderma Patient-centered Intervention Network (SPIN) Cohort cross-sectional study.
Wojeck RK, Knisely MR, Bailey DE, Somers TJ, Kwakkenbos L, Carrier ME, Nielson WR, Bartlett SJ, Malcarne VL, Hudson M, Levis B, Benedetti A, Mouthon L, Thombs BD, Silva SG; SPIN Investigators. Wojeck RK, et al. EClinicalMedicine. 2023 Jul 20;62:102104. doi: 10.1016/j.eclinm.2023.102104. eCollection 2023 Aug. EClinicalMedicine. 2023. PMID: 37533421 Free PMC article.
Effects of a support group leader education program jointly developed by health professionals and patients on peer leader self-efficacy among leaders of scleroderma support groups: a two-arm parallel partially nested randomised controlled trial.
Thombs BD, Levis B, Carrier ME, Dyas L, Nordlund J, Tao L, Aguila K, Bourgeault A, Konrad V, Sauvé M, Connolly K, Henry RS, Østbø N, Levis AW, Kwakkenbos L, Malcarne VL, El-Baalbaki G, Hudson M, Wurz A, Culos-Reed SN, Platt RW, Benedetti A; SPIN-SSLED Support Group Leader Advisory Team. Thombs BD, et al. Orphanet J Rare Dis. 2022 Oct 28;17(1):396. doi: 10.1186/s13023-022-02552-x. Orphanet J Rare Dis. 2022. PMID: 36307891 Free PMC article. Clinical Trial.
Randomized controlled trial of an internet-based self-guided hand exercise program to improve hand function in people with systemic sclerosis: the Scleroderma Patient-centered Intervention Network Hand Exercise Program (SPIN-HAND) trial.
Kwakkenbos L, Carrier ME, Welling J, Levis B, Levis AW, Sauve M, Turner KA, Tao L, Aguila K, Carboni-Jiménez A, Cañedo-Ayala M, Harb S, van den Ende C, Hudson M, van Breda W, Nguyen C, Boutron I, Rannou F, Thombs BD, Mouthon L; SPIN Investigators. Kwakkenbos L, et al. Trials. 2022 Dec 12;23(1):994. doi: 10.1186/s13063-022-06923-4. Trials. 2022. PMID: 36510233 Free PMC article. Clinical Trial.
Protocol for a partially nested randomised controlled trial to evaluate the effectiveness of the scleroderma patient-centered intervention network COVID-19 home-isolation activities together (SPIN-CHAT) program to reduce anxiety among at-risk scleroderma patients.
Thombs BD, Kwakkenbos L, Carrier ME, Bourgeault A, Tao L, Harb S, Gagarine M, Rice D, Bustamante L, Ellis K, Duchek D, Wu Y, Bhandari PM, Neupane D, Carboni-Jiménez A, Henry RS, Krishnan A, Sun Y, Levis B, He C, Turner KA, Benedetti A, Culos-Reed N, El-Baalbaki G, Hebblethwaite S, Bartlett SJ, Dyas L, Patten S, Varga J; Scleroderma Patient-centered Intervention Network (SPIN) COVID-19 Patient Advisory Team; SPIN Investigators. Thombs BD, et al. J Psychosom Res. 2020 Aug;135:110132. doi: 10.1016/j.jpsychores.2020.110132. Epub 2020 May 14. J Psychosom Res. 2020. PMID: 32521358 Free PMC article. Clinical Trial.
Protocol for a partially nested randomized controlled trial to evaluate the effectiveness of the Scleroderma Patient-centered Intervention Network Support Group Leader EDucation (SPIN-SSLED) Program.
Thombs BD, Aguila K, Dyas L, Carrier ME, Fedoruk C, Horwood L, Cañedo-Ayala M, Sauvé M, Kwakkenbos L, Malcarne VL, El-Baalbaki G, Peláez S, Connolly K, Hudson M, Platt RW; SPIN-SSLED Support Group Advisory Team. Thombs BD, et al. Trials. 2019 Dec 12;20(1):717. doi: 10.1186/s13063-019-3747-z. Trials. 2019. PMID: 31831073 Free PMC article.
Effects of cosmetic and other camouflage interventions on appearance-related and psychological outcomes among adults with visible differences in appearance: a systematic review.
Gholizadeh S, Rice DB, Carboni-Jiménez A, Kwakkenbos L, Boruff J, Krishnan A, Malcarne VL, Thombs BD; Scleroderma Patient-centered Intervention Network (SPIN) Body Image Patient Advisory Team. Gholizadeh S, et al. BMJ Open. 2021 Mar 9;11(3):e046634. doi: 10.1136/bmjopen-2020-046634. BMJ Open. 2021. PMID: 33687957 Free PMC article.
The Scleroderma Patient-centered Intervention Network Self-Management (SPIN-SELF) Program: protocol for a two-arm parallel partially nested randomized controlled feasibility trial with progression to full-scale trial.
Nordlund J, Henry RS, Kwakkenbos L, Carrier ME, Levis B, Nielson WR, Bartlett SJ, Dyas L, Tao L, Fedoruk C, Nielsen K, Hudson M, Pope J, Frech T, Gholizadeh S, Johnson SR, Piotrowski P, Jewett LR, Gordon J, Chung L, Bilsker D, Levis AW, Turner KA, Cumin J, Welling J, Fortuné C, Leite C, Gottesman K, Sauve M, Rodríguez-Reyna TS, Larche M, van Breda W, Suarez-Almazor ME, Wurz A, Culos-Reed N, Malcarne VL, Mayes MD, Boutron I, Mouthon L, Benedetti A, Thombs BD; SPIN Investigators. Nordlund J, et al. Trials. 2021 Nov 27;22(1):856. doi: 10.1186/s13063-021-05827-z. Trials. 2021. PMID: 34838105 Free PMC article.
Factors associated with fears due to COVID-19: A Scleroderma Patient-centered Intervention Network (SPIN) COVID-19 cohort study.
Wu Y, Kwakkenbos L, Henry RS, Carrier ME, Gagarine M, Harb S, Bourgeault A, Tao L, Carboni-Jiménez A, Negeri Z, Patten S, Bartlett SJ, Mouthon L, Varga J, Benedetti A, Thombs BD; SPIN Patient Advisors; SPIN Investigators. Wu Y, et al. J Psychosom Res. 2021 Jan;140:110314. doi: 10.1016/j.jpsychores.2020.110314. Epub 2020 Nov 25. J Psychosom Res. 2021. PMID: 33271402 Free PMC article.
25 results