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Return of genomic results to research participants: the floor, the ceiling, and the choices in between.
Jarvik GP, Amendola LM, Berg JS, Brothers K, Clayton EW, Chung W, Evans BJ, Evans JP, Fullerton SM, Gallego CJ, Garrison NA, Gray SW, Holm IA, Kullo IJ, Lehmann LS, McCarty C, Prows CA, Rehm HL, Sharp RR, Salama J, Sanderson S, Van Driest SL, Williams MS, Wolf SM, Wolf WA; eMERGE Act-ROR Committee and CERC Committee; CSER Act-ROR Working Group; Burke W. Jarvik GP, et al. Among authors: garrison na. Am J Hum Genet. 2014 Jun 5;94(6):818-26. doi: 10.1016/j.ajhg.2014.04.009. Epub 2014 May 8. Am J Hum Genet. 2014. PMID: 24814192 Free PMC article.
Exploring pathways to trust: a tribal perspective on data sharing.
James R, Tsosie R, Sahota P, Parker M, Dillard D, Sylvester I, Lewis J, Klejka J, Muzquiz L, Olsen P, Whitener R, Burke W; Kiana Group. James R, et al. Genet Med. 2014 Nov;16(11):820-6. doi: 10.1038/gim.2014.47. Epub 2014 May 15. Genet Med. 2014. PMID: 24830328 Free PMC article. Review.
Response to Koeller et al.
Fohner AE, Garrison NA, Austin MA, Burke W. Fohner AE, et al. Among authors: garrison na. Genet Med. 2017 Dec;19(12):10.1038/gim.2017.117. doi: 10.1038/gim.2017.117. Epub 2017 Aug 10. Genet Med. 2017. PMID: 28796237 Free PMC article. No abstract available.
Creating a data resource: what will it take to build a medical information commons?
Deverka PA, Majumder MA, Villanueva AG, Anderson M, Bakker AC, Bardill J, Boerwinkle E, Bubela T, Evans BJ, Garrison NA, Gibbs RA, Gentleman R, Glazer D, Goldstein MM, Greely H, Harris C, Knoppers BM, Koenig BA, Kohane IS, La Rosa S, Mattison J, O'Donnell CJ, Rai AK, Rehm HL, Rodriguez LL, Shelton R, Simoncelli T, Terry SF, Watson MS, Wilbanks J, Cook-Deegan R, McGuire AL. Deverka PA, et al. Among authors: garrison na. Genome Med. 2017 Sep 22;9(1):84. doi: 10.1186/s13073-017-0476-3. Genome Med. 2017. PMID: 28938910 Free PMC article.
Pathways from autism spectrum disorder diagnosis to genetic testing.
Barton KS, Tabor HK, Starks H, Garrison NA, Laurino M, Burke W. Barton KS, et al. Among authors: garrison na. Genet Med. 2018 Jul;20(7):737-744. doi: 10.1038/gim.2017.166. Epub 2017 Oct 19. Genet Med. 2018. PMID: 29048417 Free PMC article.
A framework for enhancing ethical genomic research with Indigenous communities.
Claw KG, Anderson MZ, Begay RL, Tsosie KS, Fox K, Garrison NA; Summer internship for INdigenous peoples in Genomics (SING) Consortium. Claw KG, et al. Among authors: garrison na. Nat Commun. 2018 Jul 27;9(1):2957. doi: 10.1038/s41467-018-05188-3. Nat Commun. 2018. PMID: 30054469 Free PMC article. Review.
Genomic Research Through an Indigenous Lens: Understanding the Expectations.
Garrison NA, Hudson M, Ballantyne LL, Garba I, Martinez A, Taualii M, Arbour L, Caron NR, Rainie SC. Garrison NA, et al. Annu Rev Genomics Hum Genet. 2019 Aug 31;20:495-517. doi: 10.1146/annurev-genom-083118-015434. Epub 2019 Mar 20. Annu Rev Genomics Hum Genet. 2019. PMID: 30892943 Review.
Rights, interests and expectations: Indigenous perspectives on unrestricted access to genomic data.
Hudson M, Garrison NA, Sterling R, Caron NR, Fox K, Yracheta J, Anderson J, Wilcox P, Arbour L, Brown A, Taualii M, Kukutai T, Haring R, Te Aika B, Baynam GS, Dearden PK, Chagné D, Malhi RS, Garba I, Tiffin N, Bolnick D, Stott M, Rolleston AK, Ballantyne LL, Lovett R, David-Chavez D, Martinez A, Sporle A, Walter M, Reading J, Carroll SR. Hudson M, et al. Among authors: garrison na. Nat Rev Genet. 2020 Jun;21(6):377-384. doi: 10.1038/s41576-020-0228-x. Epub 2020 Apr 6. Nat Rev Genet. 2020. PMID: 32251390 Review.
90 results