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Validation of a Set of Instruments to Assess Patient- and Caregiver-Oriented Measurements in Spinal Muscular Atrophy: Results of the SMA-TOOL Study.
Vázquez-Costa JF, Branas-Pampillón M, Medina-Cantillo J, Povedano M, Pitarch-Castellano I, López-Lobato M, Fernández-Ramos JA, Lafuente-Hidalgo M, Rojas-García R, Caballero-Caballero JM, Málaga I, Eirís-Puñal J, De Lemus M, Cattinari MG, Cabello-Moruno R, Díaz-Abós P, Sánchez-Menéndez V, Rebollo P, Maurino J, Madruga-Garrido M. Vázquez-Costa JF, et al. Among authors: de lemus m. Neurol Ther. 2023 Feb;12(1):89-105. doi: 10.1007/s40120-022-00411-2. Epub 2022 Oct 21. Neurol Ther. 2023. PMID: 36269538 Free PMC article.
Design of a Non-Interventional Study to Validate a Set of Patient- and Caregiver-Oriented Measurements to Assess Health Outcomes in Spinal Muscular Atrophy (SMA-TOOL Study).
Madruga-Garrido M, Vázquez-Costa JF, Medina-Cantillo J, Brañas M, Cattinari MG, de Lemus M, Díaz-Abós P, Sánchez-Menéndez V, Terrancle Á, Rebollo P, Maurino J. Madruga-Garrido M, et al. Among authors: de lemus m. Neurol Ther. 2021 Jun;10(1):361-373. doi: 10.1007/s40120-020-00229-w. Epub 2021 Jan 9. Neurol Ther. 2021. PMID: 33420962 Free PMC article.
Understanding the relationship between the 32-item motor function measure and daily activities from an individual with spinal muscular atrophy and their caregivers' perspective: a two-part study.
Duong T, Braid J, Staunton H, Barriere A, Petridis F, Reithinger J, Cruz R, Jarecki J, De Lemus M, Gusset N, Broekgaarden R, Randhawa S, Flynn J, Arbuckle R, Reif S, Yang L, De Martini A, Vuillerot C. Duong T, et al. Among authors: de lemus m. BMC Neurol. 2021 Mar 31;21(1):143. doi: 10.1186/s12883-021-02166-z. BMC Neurol. 2021. PMID: 33789607 Free PMC article.
Correction to: Understanding the relationship between the 32-item motor function measure and daily activities from an individual with spinal muscular atrophy and their caregivers' perspective: a two-part study.
Duong T, Braid J, Staunton H, Barriere A, Petridis F, Reithinger J, Cruz R, Jarecki J, De Lemus M, Gusset N, Broekgaarden R, Randhawa S, Flynn J, Arbuckle R, Reif S, Yang L, De Martini A, Vuillerot C. Duong T, et al. Among authors: de lemus m. BMC Neurol. 2021 Sep 13;21(1):354. doi: 10.1186/s12883-021-02307-4. BMC Neurol. 2021. PMID: 34517827 Free PMC article. No abstract available.
Position Statement: Sharing of Clinical Research Data in Spinal Muscular Atrophy to Accelerate Research and Improve Outcomes for Patients.
Lochmüller H, Evans D, Farwell W, Finkel R, Goemans N, de Lemus M, Matyushenko V, Muntoni F, Ouillade MC, Schwersenz I, Wilson P. Lochmüller H, et al. Among authors: de lemus m. J Neuromuscul Dis. 2018;5(2):131-133. doi: 10.3233/JND-180325. J Neuromuscul Dis. 2018. PMID: 29865093 Free PMC article. No abstract available.
The Position of Neuromuscular Patients in Shared Decision Making. Report from the 235th ENMC Workshop: Milan, Italy, January 19-20, 2018.
Lochmüller H, Ambrosini A, van Engelen B, Hansson M, Tibben A, Breukel A, Sterrenburg E, Schrijvers G, Meijer I, Padberg G, Peay H, Monaco L, Snape M, Lennox A, Mazzone E, Bere N, de Lemus M, Landfeldt E, Willmann R; 235th ENMC workshop study group. Lochmüller H, et al. Among authors: de lemus m. J Neuromuscul Dis. 2019;6(1):161-172. doi: 10.3233/JND-180368. J Neuromuscul Dis. 2019. PMID: 30714970
13 results