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Public engagement with genomics.
Middleton A, Adams A, Aidid H, Atutornu J, Boraschi D, Borra J, Bircan T, Burch C, Costa A, Dickinson A, Enticknap A, Galloway C, Gale F, Garlick E, Haydon E, Henriques S, Mitchell M, Milne R, Monaghan J, Morley KI, Muella Santos M, Olivares Boldu L, Olumogba F, Orviss K, Parry V, Patch C, Robarts L, Shingles S, Smidt C, Tomlin B, Parkinson S. Middleton A, et al. Among authors: costa a. Wellcome Open Res. 2023 Sep 18;8:310. doi: 10.12688/wellcomeopenres.19473.2. eCollection 2023. Wellcome Open Res. 2023. PMID: 37928209 Free PMC article. Review.
Demonstrating trustworthiness when collecting and sharing genomic data: public views across 22 countries.
Milne R, Morley KI, Almarri MA, Anwer S, Atutornu J, Baranova EE, Bevan P, Cerezo M, Cong Y, Costa A, Critchley C, Fernow J, Goodhand P, Hasan Q, Hibino A, Houeland G, Howard HC, Hussain SZ, Malmgren CI, Izhevskaya VL, Jędrzejak A, Jinhong C, Kimura M, Kleiderman E, Leach B, Liu K, Mascalzoni D, Mendes Á, Minari J, Nicol D, Niemiec E, Patch C, Pollard J, Prainsack B, Rivière M, Robarts L, Roberts J, Romano V, Sheerah HA, Smith J, Soulier A, Steed C, Stefànsdóttir V, Tandre C, Thorogood A, Voigt TH, Wang N, West AV, Yoshizawa G, Middleton A. Milne R, et al. Among authors: costa a. Genome Med. 2021 May 25;13(1):92. doi: 10.1186/s13073-021-00903-0. Genome Med. 2021. PMID: 34034801 Free PMC article.
Return of genomic results does not motivate intent to participate in research for all: Perspectives across 22 countries.
Milne R, Morley KI, Almarri MA, Atutornu J, Baranova EE, Bevan P, Cerezo M, Cong Y, Costa A, Feijao C, de Freitas C, Fernow J, Goodhand P, Hasan Q, Hibino A, Houeland G, Howard HC, Hussain Sheikh Z, Malmgren CI, Izhevskaya VL, Jędrzejak A, Jinhong C, Kimura M, Kleiderman E, Liu K, Mascalzoni D, Mendes Á, Minari J, Nicol D, Niemiec E, Patch C, Prainsack B, Rivière M, Robarts L, Roberts J, Romano V, Sheerah HA, Smith J, Soulier A, Steed C, Stefànsdóttir V, Tandre C, Thorogood A, Voigt TH, Wang N, Yoshizawa G, Middleton A. Milne R, et al. Among authors: costa a. Genet Med. 2022 May;24(5):1120-1129. doi: 10.1016/j.gim.2022.01.002. Epub 2022 Feb 3. Genet Med. 2022. PMID: 35125311 Free article.
The legacy of language: What we say, and what people hear, when we talk about genomics.
Middleton A, Costa A, Milne R, Patch C, Robarts L, Tomlin B, Danson M, Henriques S, Atutornu J, Aidid U, Boraschi D, Galloway C, Yazmir K, Pettit S, Harcourt T, Connolly A, Li A, Cala J, Lake S, Borra J, Parry V. Middleton A, et al. Among authors: costa a. HGG Adv. 2023 Aug 31;4(4):100231. doi: 10.1016/j.xhgg.2023.100231. eCollection 2023 Oct 12. HGG Adv. 2023. PMID: 37869565 Free PMC article.
Co-designing models for the communication of genomic results for rare diseases: a comparative study in the Czech Republic and the United Kingdom.
Costa A, Franková V, Robert G, Macek M, Patch C, Alexander E, Arellanesova A, Clayton-Smith J, Hunter A, Havlovicová M, Pourová R, Pritchard M, Roberts L, Zoubková V, Metcalfe A. Costa A, et al. J Community Genet. 2022 Jun;13(3):313-327. doi: 10.1007/s12687-022-00589-w. Epub 2022 May 6. J Community Genet. 2022. PMID: 35523996 Free PMC article.
7,478 results