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Establishing a Core Outcome Set for Autosomal Dominant Polycystic Kidney Disease: Report of the Standardized Outcomes in Nephrology-Polycystic Kidney Disease (SONG-PKD) Consensus Workshop.
Cho Y, Tong A, Craig JC, Mustafa RA, Chapman A, Perrone RD, Ahn C, Fowler K, Torres V, Gansevoort RT, Ong ACM, Coolican H, Tze-Wah Kao J, Harris T, Gutman T, Shen JI, Viecelli AK, Johnson DW, Au E, El-Damanawi R, Logeman C, Ju A, Manera KE, Chonchol M, Odland D, Baron D, Pei Y, Sautenet B, Rastogi A, Sharma A, Rangan G; SONG-PKD Workshop Investigators. Cho Y, et al. Among authors: coolican h. Am J Kidney Dis. 2021 Feb;77(2):255-263. doi: 10.1053/j.ajkd.2020.05.024. Epub 2020 Aug 6. Am J Kidney Dis. 2021. PMID: 32771648 Free article.
Standardised Outcomes in Nephrology-Polycystic Kidney Disease (SONG-PKD): study protocol for establishing a core outcome set in polycystic kidney disease.
Cho Y, Sautenet B, Rangan G, Craig JC, Ong ACM, Chapman A, Ahn C, Chen D, Coolican H, Kao JT, Gansevoort R, Perrone R, Harris T, Torres V, Pei Y, Kerr PG, Ryan J, Gutman T, Howell M, Ju A, Manera KE, Teixeira-Pinto A, Hamiwka LA, Tong A. Cho Y, et al. Among authors: coolican h. Trials. 2017 Nov 23;18(1):560. doi: 10.1186/s13063-017-2298-4. Trials. 2017. PMID: 29169385 Free PMC article.
Identifying patient-important outcomes in polycystic kidney disease: An international nominal group technique study.
Cho Y, Sautenet B, Gutman T, Rangan G, Craig JC, Ong AC, Chapman A, Ahn C, Coolican H, Kao JT, Gansevoort R, Perrone RD, Harris T, Torres V, Pei Y, Kerr PG, Ryan J, Johnson DW, Viecelli AK, Geneste C, Kim H, Kim Y, Oh YK, Teixeira-Pinto A, Logeman C, Howell M, Ju A, Manera KE, Tong A. Cho Y, et al. Among authors: coolican h. Nephrology (Carlton). 2019 Dec;24(12):1214-1224. doi: 10.1111/nep.13566. Epub 2019 May 2. Nephrology (Carlton). 2019. PMID: 30663163 Free article.
Range and Variability of Outcomes Reported in Randomized Trials Conducted in Patients With Polycystic Kidney Disease: A Systematic Review.
Sautenet B, Cho Y, Gutman T, Rangan G, Ong A, Chapman AB, Ahn C, Coolican H, Tze-Wah Kao J, Fowler K, Gansevoort RT, Geneste C, Perrone RD, Harris T, Torres VE, Pei Y, Craig JC, Tong A; SONG-PKD Initiative. Sautenet B, et al. Among authors: coolican h. Am J Kidney Dis. 2020 Aug;76(2):213-223. doi: 10.1053/j.ajkd.2019.12.003. Epub 2020 Mar 11. Am J Kidney Dis. 2020. PMID: 32171640 Free article.
Core Outcome Domains for Trials in Autosomal Dominant Polycystic Kidney Disease: An International Delphi Survey.
Cho Y, Rangan G, Logeman C, Ryu H, Sautenet B, Perrone RD, Nadeau-Fredette AC, Mustafa RA, Htay H, Chonchol M, Harris T, Gutman T, Craig JC, Ong ACM, Chapman A, Ahn C, Coolican H, Kao JT, Gansevoort RT, Torres V, Pei Y, Johnson DW, Viecelli AK, Teixeira-Pinto A, Howell M, Ju A, Manera KE, Tong A. Cho Y, et al. Among authors: coolican h. Am J Kidney Dis. 2020 Sep;76(3):361-373. doi: 10.1053/j.ajkd.2020.01.005. Epub 2020 Apr 28. Am J Kidney Dis. 2020. PMID: 32359822
Establishing core outcome domains in pediatric kidney disease: report of the Standardized Outcomes in Nephrology-Children and Adolescents (SONG-KIDS) consensus workshops.
Hanson CS, Craig JC, Logeman C, Sinha A, Dart A, Eddy AA, Guha C, Gipson DS, Bockenhauer D, Yap HK, Groothoff J, Zappitelli M, Webb NJA, Alexander SI, Furth SL, Samuel S, Neu A, Viecelli AK, Ju A, Sharma A, Au EH, Desmond H, Shen JI, Manera KE, Azukaitis K, Dunn L, Carter SA, Gutman T, Cho Y, Walker A, Francis A, Sanchez-Kazi C, Kausman J, Pearl M, Benador N, Sahney S, Tong A; SONG-Kids consensus workshops investigators. Hanson CS, et al. Kidney Int. 2020 Sep;98(3):553-565. doi: 10.1016/j.kint.2020.05.054. Epub 2020 Jul 4. Kidney Int. 2020. PMID: 32628942
'A sword of Damocles': patient and caregiver beliefs, attitudes and perspectives on presymptomatic testing for autosomal dominant polycystic kidney disease: a focus group study.
Logeman C, Cho Y, Sautenet B, Rangan GK, Gutman T, Craig J, Ong A, Chapman A, Ahn C, Coolican H, Tze-Wah Kao J, Gansevoort RT, Perrone R, Harris T, Torres V, Fowler K, Pei Y, Kerr P, Ryan J, Johnson D, Viecelli A, Geneste C, Kim H, Kim Y, Howell M, Ju A, Manera KE, Teixeira-Pinto A, Parasivam G, Tong A. Logeman C, et al. Among authors: coolican h. BMJ Open. 2020 Oct 10;10(10):e038005. doi: 10.1136/bmjopen-2020-038005. BMJ Open. 2020. PMID: 33040007 Free PMC article.
Assessment of Dietary Sodium Intake Using the Scored Salt Questionnaire in Autosomal Dominant Polycystic Kidney Disease.
Wong ATY, Munt A, Allman-Farinelli M, Badve SV, Boudville N, Coolican H, Chandra AN, Coulshed S, Fernando M, Grantham J, Haloob I, Harris DCH, Hawley CM, Holt J, Johnson DW, Kumar K, Lee VW, Lonergan M, Mai J, Rangan A, Roger SD, Saravanabavan S, Sud K, Torres VE, Vilayur E, Zhang JQJ, Rangan GK. Wong ATY, et al. Among authors: coolican h. Nutrients. 2020 Nov 2;12(11):3376. doi: 10.3390/nu12113376. Nutrients. 2020. PMID: 33147804 Free PMC article.
Participant Perceptions in a Long-term Clinical Trial of Autosomal Dominant Polycystic Kidney Disease.
Amin S, Sangadi I, Allman-Farinelli M, Badve SV, Boudville N, Coolican H, Coulshed S, Foster S, Fernando M, Haloob I, Harris DCH, Hawley CM, Holt J, Howell M, Kumar K, Johnson DW, Lee VW, Mai J, Rangan A, Roger SD, Sud K, Torres V, Vilayur E, Rangan GK. Amin S, et al. Among authors: coolican h. Kidney Med. 2023 Jun 29;5(9):100691. doi: 10.1016/j.xkme.2023.100691. eCollection 2023 Sep. Kidney Med. 2023. PMID: 37602144 Free PMC article.
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