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What does it mean to be affiliated with care?: Delphi consensus on the definition of "unaffiliation" and "specialist" in sickle cell disease.
Lamont AE, Hsu LL, Jacobs S, Gibson R, Treadwell M, Chen Y, Lottenberg R, Axelrod K, Varughese T, Melvin C, Smith S, Chukwudozie IB, Kanter J; Sickle Cell Disease Implementation Consortium. Lamont AE, et al. Among authors: chen y. PLoS One. 2022 Nov 11;17(11):e0272204. doi: 10.1371/journal.pone.0272204. eCollection 2022. PLoS One. 2022. PMID: 36367870 Free PMC article.
Perspectives of individuals with sickle cell disease on barriers to care.
Phillips S, Chen Y, Masese R, Noisette L, Jordan K, Jacobs S, Hsu LL, Melvin CL, Treadwell M, Shah N, Tanabe P, Kanter J. Phillips S, et al. Among authors: chen y. PLoS One. 2022 Mar 23;17(3):e0265342. doi: 10.1371/journal.pone.0265342. eCollection 2022. PLoS One. 2022. PMID: 35320302 Free PMC article.
Effective Recruitment Strategies for a Sickle Cell Patient Registry Across Sites from the Sickle Cell Disease Implementation Consortium (SCDIC).
Masese RV, DeMartino T, Bonnabeau E, Burns EN, Preiss L, Varughese T, Nocek JM, Lasley P, Chen Y, Davila C, Nwosu C, Scott S, Bowman L, Gordon L, Clesca C, Peters-Lawrence M, Melvin C, Shah N, Tanabe P; SCD Implementation Consortium. Masese RV, et al. Among authors: chen y. J Immigr Minor Health. 2021 Aug;23(4):725-732. doi: 10.1007/s10903-020-01102-6. Epub 2020 Oct 9. J Immigr Minor Health. 2021. PMID: 33034793 Free PMC article.
An evaluation of patient-reported outcomes in sickle cell disease within a conceptual model.
Treadwell MJ, Mushiana S, Badawy SM, Preiss L, King AA, Kroner B, Chen Y, Glassberg J, Gordeuk V, Shah N, Snyder A, Wun T; Sickle Cell Disease Implementation Consortium (SCDIC). Treadwell MJ, et al. Among authors: chen y. Qual Life Res. 2022 Sep;31(9):2681-2694. doi: 10.1007/s11136-022-03132-z. Epub 2022 Apr 21. Qual Life Res. 2022. PMID: 35445915 Free PMC article.
Perspectives on tracking data reuse across biodata resources.
Ross KE, Bastian FB, Buys M, Cook CE, D'Eustachio P, Harrison M, Hermjakob H, Li D, Lord P, Natale DA, Peters B, Sternberg PW, Su AI, Thakur M, Thomas PD, Bateman A; and the UniProt Consortium. Ross KE, et al. Bioinform Adv. 2024 Apr 25;4(1):vbae057. doi: 10.1093/bioadv/vbae057. eCollection 2024. Bioinform Adv. 2024. PMID: 38721398 Free PMC article.
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