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Standards for the care of people with cystic fibrosis; establishing and maintaining health.
Southern KW, Addy C, Bell SC, Bevan A, Borawska U, Brown C, Burgel PR, Button B, Castellani C, Chansard A, Chilvers MA, Davies G, Davies JC, De Boeck K, Declercq D, Doumit M, Drevinek P, Fajac I, Gartner S, Georgiopoulos AM, Gursli S, Gramegna A, Hansen CM, Hug MJ, Lammertyn E, Landau EEC, Langley R, Mayer-Hamblett N, Middleton A, Middleton PG, Mielus M, Morrison L, Munck A, Plant B, Ploeger M, Bertrand DP, Pressler T, Quon BS, Radtke T, Saynor ZL, Shufer I, Smyth AR, Smith C, van Koningsbruggen-Rietschel S. Southern KW, et al. Among authors: chansard a. J Cyst Fibros. 2024 Jan;23(1):12-28. doi: 10.1016/j.jcf.2023.12.002. Epub 2023 Dec 21. J Cyst Fibros. 2024. PMID: 38129255 Free article. Review.
A conceptual framework to develop a patient-reported experience questionnaire on the cystic fibrosis journey in France: the ExPaParM collaborative study.
Pougheon Bertrand D, Fanchini A, Lombrail P, Rault G, Chansard A, Le Breton N, Frenod C, Milon F, Royer CH, Segretain D, Silber M, Therouanne S, Haesebaert J, Llerena C, Michel P, Reynaud Q. Pougheon Bertrand D, et al. Among authors: chansard a. Orphanet J Rare Dis. 2023 Feb 18;18(1):31. doi: 10.1186/s13023-023-02640-6. Orphanet J Rare Dis. 2023. PMID: 36805739 Free PMC article.
Collaborative research protocol to define patient-reported experience measures of the cystic fibrosis care pathway in France: the ExPaParM study.
Pougheon Bertrand D, Fanchini A, Lombrail P, Rault G, Chansard A, Le Breton N, Frenod C, Milon F, Heymes-Royer C, Segretain D, Silber M, Therouanne S, Haesebaert J, Llerena C, Michel P, Reynaud Q. Pougheon Bertrand D, et al. Among authors: chansard a. Orphanet J Rare Dis. 2022 Feb 22;17(1):73. doi: 10.1186/s13023-022-02204-0. Orphanet J Rare Dis. 2022. PMID: 35193621 Free PMC article.
"Il faut continuer à poser des questions" patient reported outcome measures in cystic fibrosis: An anthropological perspective.
Coucke R, Chansard A, Bontemps V, Grenet D, Hubert D, Martin C, Lammertyn E, Bardin E, Bulteel V, Chedevergne F, Bourgeois ML, Burgel PR, Honore I, de Keyser H, Kirszenbaum M, de Carli P, Sermet-Gaudelus I, Hayes K; European Cystic Fibrosis Society-Clinical Trials Network Patient Advisory Group. Coucke R, et al. Among authors: chansard a. J Cyst Fibros. 2021 Nov;20(6):e108-e113. doi: 10.1016/j.jcf.2021.02.009. Epub 2021 Feb 27. J Cyst Fibros. 2021. PMID: 33648900 Free article.