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Consent recommendations for research and international data sharing involving persons with dementia.
Thorogood A, Mäki-Petäjä-Leinonen A, Brodaty H, Dalpé G, Gastmans C, Gauthier S, Gove D, Harding R, Knoppers BM, Rossor M, Bobrow M; Global Alliance for Genomics and Health, Ageing and Dementia Task Team. Thorogood A, et al. Among authors: bobrow m. Alzheimers Dement. 2018 Oct;14(10):1334-1343. doi: 10.1016/j.jalz.2018.05.011. Epub 2018 Jul 2. Alzheimers Dement. 2018. PMID: 30293575 Free article.
RESEARCH ETHICS. Ethics review for international data-intensive research.
Dove ES, Townend D, Meslin EM, Bobrow M, Littler K, Nicol D, de Vries J, Junker A, Garattini C, Bovenberg J, Shabani M, Lévesque E, Knoppers BM. Dove ES, et al. Among authors: bobrow m. Science. 2016 Mar 25;351(6280):1399-400. doi: 10.1126/science.aad5269. Science. 2016. PMID: 27013718 Free PMC article. No abstract available.
Data Safe Havens in health research and healthcare.
Burton PR, Murtagh MJ, Boyd A, Williams JB, Dove ES, Wallace SE, Tassé AM, Little J, Chisholm RL, Gaye A, Hveem K, Brookes AJ, Goodwin P, Fistein J, Bobrow M, Knoppers BM. Burton PR, et al. Among authors: bobrow m. Bioinformatics. 2015 Oct 15;31(20):3241-8. doi: 10.1093/bioinformatics/btv279. Epub 2015 Jun 25. Bioinformatics. 2015. PMID: 26112289 Free PMC article. Review.
Genomic cloud computing: legal and ethical points to consider.
Dove ES, Joly Y, Tassé AM; Public Population Project in Genomics and Society (P3G) International Steering Committee; International Cancer Genome Consortium (ICGC) Ethics and Policy Committee; Knoppers BM. Dove ES, et al. Eur J Hum Genet. 2015 Oct;23(10):1271-8. doi: 10.1038/ejhg.2014.196. Epub 2014 Sep 24. Eur J Hum Genet. 2015. PMID: 25248396 Free PMC article.
Prepublication data sharing.
Toronto International Data Release Workshop Authors; Birney E, Hudson TJ, Green ED, Gunter C, Eddy S, Rogers J, Harris JR, Ehrlich SD, Apweiler R, Austin CP, Berglund L, Bobrow M, Bountra C, Brookes AJ, Cambon-Thomsen A, Carter NP, Chisholm RL, Contreras JL, Cooke RM, Crosby WL, Dewar K, Durbin R, Dyke SO, Ecker JR, El Emam K, Feuk L, Gabriel SB, Gallacher J, Gelbart WM, Granell A, Guarner F, Hubbard T, Jackson SA, Jennings JL, Joly Y, Jones SM, Kaye J, Kennedy KL, Knoppers BM, Kyrpides NC, Lowrance WW, Luo J, MacKay JJ, Martín-Rivera L, McCombie WR, McPherson JD, Miller L, Miller W, Moerman D, Mooser V, Morton CC, Ostell JM, Ouellette BF, Parkhill J, Raina PS, Rawlings C, Scherer SE, Scherer SW, Schofield PN, Sensen CW, Stodden VC, Sussman MR, Tanaka T, Thornton J, Tsunoda T, Valle D, Vuorio EI, Walker NM, Wallace S, Weinstock G, Whitman WB, Worley KC, Wu C, Wu J, Yu J. Toronto International Data Release Workshop Authors, et al. Among authors: bobrow m. Nature. 2009 Sep 10;461(7261):168-70. doi: 10.1038/461168a. Nature. 2009. PMID: 19741685 Free PMC article.
Managing clinically significant findings in research: the UK10K example.
Kaye J, Hurles M, Griffin H, Grewal J, Bobrow M, Timpson N, Smee C, Bolton P, Durbin R, Dyke S, Fitzpatrick D, Kennedy K, Kent A, Muddyman D, Muntoni F, Raymond LF, Semple R, Spector T; UK 10K. Kaye J, et al. Among authors: bobrow m. Eur J Hum Genet. 2014 Sep;22(9):1100-4. doi: 10.1038/ejhg.2013.290. Epub 2014 Jan 15. Eur J Hum Genet. 2014. PMID: 24424120 Free PMC article.
337 results