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Standards for the care of people with cystic fibrosis; establishing and maintaining health.
Southern KW, Addy C, Bell SC, Bevan A, Borawska U, Brown C, Burgel PR, Button B, Castellani C, Chansard A, Chilvers MA, Davies G, Davies JC, De Boeck K, Declercq D, Doumit M, Drevinek P, Fajac I, Gartner S, Georgiopoulos AM, Gursli S, Gramegna A, Hansen CM, Hug MJ, Lammertyn E, Landau EEC, Langley R, Mayer-Hamblett N, Middleton A, Middleton PG, Mielus M, Morrison L, Munck A, Plant B, Ploeger M, Bertrand DP, Pressler T, Quon BS, Radtke T, Saynor ZL, Shufer I, Smyth AR, Smith C, van Koningsbruggen-Rietschel S. Southern KW, et al. Among authors: bertrand dp. J Cyst Fibros. 2024 Jan;23(1):12-28. doi: 10.1016/j.jcf.2023.12.002. Epub 2023 Dec 21. J Cyst Fibros. 2024. PMID: 38129255 Free article. Review.
Patient and public involvement in the benefit-risk assessment and decision concerning health products: position of the Scientific Advisory Board of the French National Agency for Medicines and Health Products Safety (ANSM).
Belgodère L, Pougheon Bertrand D, Jaulent MC, Rabeharisoa V, Janssens W, Rollason V, Barbot J, Vernant JP, Oualikene Gonin W, Maison P, Ankri J; Scientific Advisory Board of the ANSM. Belgodère L, et al. BMJ Glob Health. 2023 May;8(5):e011966. doi: 10.1136/bmjgh-2023-011966. BMJ Glob Health. 2023. PMID: 37208125 Free PMC article. No abstract available.
Using registry data to improve quality of care.
McIntyre K, Bertrand DP, Rault G. McIntyre K, et al. Among authors: bertrand dp. J Cyst Fibros. 2018 Sep;17(5):566-572. doi: 10.1016/j.jcf.2018.06.006. Epub 2018 Jul 5. J Cyst Fibros. 2018. PMID: 30196852 Free article. Review.