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Fostering global data sharing: highlighting the recommendations of the Research Data Alliance COVID-19 working group.
Austin CC, Bernier A, Bezuidenhout L, Bicarregui J, Biro T, Cambon-Thomsen A, Carroll SR, Cournia Z, Dabrowski PW, Diallo G, Duflot T, Garcia L, Gesing S, Gonzalez-Beltran A, Gururaj A, Harrower N, Lin D, Medeiros C, Méndez E, Meyers N, Mietchen D, Nagrani R, Nilsonne G, Parker S, Pickering B, Pienta A, Polydoratou P, Psomopoulos F, Rennes S, Rowe R, Sansone SA, Shanahan H, Sitz L, Stocks J, Tovani-Palone MR, Uhlmansiek M; Research Data Alliance. Austin CC, et al. Among authors: bernier a. Wellcome Open Res. 2021 May 26;5:267. doi: 10.12688/wellcomeopenres.16378.2. eCollection 2020. Wellcome Open Res. 2021. PMID: 33501381 Free PMC article.
Radical collaboration during a global health emergency: development of the RDA COVID-19 data sharing recommendations and guidelines.
Pickering B, Biro T, Austin CC, Bernier A, Bezuidenhout L, Casorrán C, Crawley FP, David R, Engelhardt C, Mitrea G, Mochmann IC, Nagrani R, O'Brien-Uhlmansiek M, Parker S, Wang M, Castro LJ, Cournia Z, Dharmawardena K, Diallo G, Dillo I, Gonzalez-Beltran A, Gururaj A, Gutam S, Harrower N, Jonnagaddala J, McNeill K, Mietchen D, Pienta A, Polydoratou P, Tovani-Palone MR. Pickering B, et al. Among authors: bernier a. Open Res Eur. 2021 Jun 16;1:69. doi: 10.12688/openreseurope.13369.1. eCollection 2021. Open Res Eur. 2021. PMID: 37645170 Free PMC article.
Pandemics, privacy, and public health research.
Bernier A, Knoppers BM. Bernier A, et al. Can J Public Health. 2020 Aug;111(4):454-457. doi: 10.17269/s41997-020-00368-5. Epub 2020 Jun 26. Can J Public Health. 2020. PMID: 32592023 Free PMC article.
GA4GH: International policies and standards for data sharing across genomic research and healthcare.
Rehm HL, Page AJH, Smith L, Adams JB, Alterovitz G, Babb LJ, Barkley MP, Baudis M, Beauvais MJS, Beck T, Beckmann JS, Beltran S, Bernick D, Bernier A, Bonfield JK, Boughtwood TF, Bourque G, Bowers SR, Brookes AJ, Brudno M, Brush MH, Bujold D, Burdett T, Buske OJ, Cabili MN, Cameron DL, Carroll RJ, Casas-Silva E, Chakravarty D, Chaudhari BP, Chen SH, Cherry JM, Chung J, Cline M, Clissold HL, Cook-Deegan RM, Courtot M, Cunningham F, Cupak M, Davies RM, Denisko D, Doerr MJ, Dolman LI, Dove ES, Dursi LJ, Dyke SOM, Eddy JA, Eilbeck K, Ellrott KP, Fairley S, Fakhro KA, Firth HV, Fitzsimons MS, Fiume M, Flicek P, Fore IM, Freeberg MA, Freimuth RR, Fromont LA, Fuerth J, Gaff CL, Gan W, Ghanaim EM, Glazer D, Green RC, Griffith M, Griffith OL, Grossman RL, Groza T, Auvil JMG, Guigó R, Gupta D, Haendel MA, Hamosh A, Hansen DP, Hart RK, Hartley DM, Haussler D, Hendricks-Sturrup RM, Ho CWL, Hobb AE, Hoffman MM, Hofmann OM, Holub P, Hsu JS, Hubaux JP, Hunt SE, Husami A, Jacobsen JO, Jamuar SS, Janes EL, Jeanson F, Jené A, Johns AL, Joly Y, Jones SJM, Kanitz A, Kato K, Keane TM, Kekesi-Lafrance K, Kelleher J, Kerry G, Khor SS, Knoppers BM, Konopko MA, Kosaki K, Kuba M, Lawson J, Leinonen … See abstract for full author list ➔ Rehm HL, et al. Among authors: bernier a. Cell Genom. 2021 Nov 10;1(2):100029. doi: 10.1016/j.xgen.2021.100029. Cell Genom. 2021. PMID: 35072136 Free PMC article.
An agenda-setting paper on data sharing platforms: euCanSHare workshop.
Devriendt T, Ammann C, W Asselbergs F, Bernier A, Costas R, Friedrich MG, Gelpi JL, Jarvelin MR, Kuulasmaa K, Lekadir K, Mayrhofer MT, Papez V, Pasterkamp G, Petersen SE, Schmidt CO, Schulz-Menger J, Söderberg S, Shabani M, Veronesi G, Viezzer DS, Borry P. Devriendt T, et al. Among authors: bernier a. Open Res Eur. 2021 Nov 23;1:80. doi: 10.12688/openreseurope.13860.2. eCollection 2021. Open Res Eur. 2021. PMID: 37645200 Free PMC article.
Bridging the European Data Sharing Divide in Genomic Science.
Molnár-Gábor F, Beauvais MJS, Bernier A, Jimenez MPN, Recuero M, Knoppers BM. Molnár-Gábor F, et al. Among authors: bernier a. J Med Internet Res. 2022 Oct 19;24(10):e37236. doi: 10.2196/37236. J Med Internet Res. 2022. PMID: 36260387 Free PMC article.
The international data governance landscape.
Bernier A, Molnár-Gábor F, Knoppers BM. Bernier A, et al. J Law Biosci. 2022 Apr 4;9(1):lsac005. doi: 10.1093/jlb/lsac005. eCollection 2022 Jan-Jun. J Law Biosci. 2022. PMID: 35382430 Free PMC article.
293 results