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Development of a Rasch-Built Amyotrophic Lateral Sclerosis Impairment Multidomain Scale to Measure Disease Progression in ALS.
de Jongh AD, van Eijk RPA, Bakker LA, Bunte TM, Beelen A, van der Meijden C, van Es MA, Visser-Meily JMA, Kruitwagen ET, Veldink JH, van den Berg LH. de Jongh AD, et al. Among authors: beelen a. Neurology. 2023 Aug 8;101(6):e602-e612. doi: 10.1212/WNL.0000000000207483. Epub 2023 Jun 13. Neurology. 2023. PMID: 37311649 Free PMC article.
Frequency of euthanasia, factors associated with end-of-life practices, and quality of end-of-life care in patients with amyotrophic lateral sclerosis in the Netherlands: a population-based cohort study.
van Eenennaam RM, Kruithof W, Beelen A, Bakker LA, van Eijk RPA, Maessen M, Baardman JF, Visser-Meily JMA, Veldink JH, van den Berg LH. van Eenennaam RM, et al. Among authors: beelen a. Lancet Neurol. 2023 Jul;22(7):591-601. doi: 10.1016/S1474-4422(23)00155-2. Lancet Neurol. 2023. PMID: 37353279
Evaluation of the nation-wide implementation of ALS home monitoring & coaching: an e-health innovation for personalized care for patients with motor neuron disease.
Dontje ML, Kruitwagen-van Reenen E, van Wijk E, Baars E, Visser-Meily JMA, Beelen A; Study Group ALS Home monitoring & Coaching. Dontje ML, et al. Among authors: beelen a. BMC Health Serv Res. 2022 Nov 22;22(1):1389. doi: 10.1186/s12913-022-08724-6. BMC Health Serv Res. 2022. PMID: 36419109 Free PMC article.
Stigma experienced by ALS/PMA patients and their caregivers: a mixed-methods study.
Sommers-Spijkerman M, Kavanaugh MS, Kruitwagen-Van Reenen E, Zwarts-Engelbert A, Visser-Meily JMA, Beelen A. Sommers-Spijkerman M, et al. Among authors: beelen a. Amyotroph Lateral Scler Frontotemporal Degener. 2023 May;24(3-4):327-338. doi: 10.1080/21678421.2022.2161911. Epub 2023 Jan 2. Amyotroph Lateral Scler Frontotemporal Degener. 2023. PMID: 36593637
Portable fixed dynamometry enables home-based, reliable assessment of muscle strength in patients with amyotrophic lateral sclerosis: a pilot study.
Van Unnik JWJ, Bakers JNE, Kokx S, Van Den Berg LH, Visser-Meily JMA, Beelen A, Van Eijk RPA. Van Unnik JWJ, et al. Among authors: beelen a. Amyotroph Lateral Scler Frontotemporal Degener. 2023 Jul 10:1-10. doi: 10.1080/21678421.2023.2231494. Online ahead of print. Amyotroph Lateral Scler Frontotemporal Degener. 2023. PMID: 37427714
What, how and when do families communicate about ALS? A qualitative exploration of parents' and children's perceptions.
Sommers-Spijkerman M, Stukker A, Kavanaugh MS, Ketelaar M, Visser-Meily JMA, Beelen A. Sommers-Spijkerman M, et al. Among authors: beelen a. Amyotroph Lateral Scler Frontotemporal Degener. 2024 May;25(3-4):256-263. doi: 10.1080/21678421.2023.2290738. Epub 2023 Dec 9. Amyotroph Lateral Scler Frontotemporal Degener. 2024. PMID: 38069659
192 results