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Page 1
Lung function decline preceding chronic respiratory failure in spinal muscular atrophy: a national prospective cohort study.
Veldhoen ES, Wijngaarde CA, van Eijk RPA, Asselman FL, Seddiqi N, Otto LAM, Stam M, Cuppen I, Wadman RI, van Asperen RMW, Hulzebos EHJ, van den Oudenrijn LPV, Bartels B, Boezer J, Gaytant M, van der Ent CK, van der Pol WL. Veldhoen ES, et al. Among authors: bartels b. Orphanet J Rare Dis. 2023 Feb 23;18(1):40. doi: 10.1186/s13023-023-02634-4. Orphanet J Rare Dis. 2023. PMID: 36823666 Free PMC article.
Protocol for a phase II, monocentre, double-blind, placebo-controlled, cross-over trial to assess efficacy of pyridostigmine in patients with spinal muscular atrophy types 2-4 (SPACE trial).
Stam M, Wadman RI, Wijngaarde CA, Bartels B, Asselman FL, Otto LAM, Goedee HS, Habets LE, de Groot JF, Schoenmakers MAGC, Cuppen I, van den Berg LH, van der Pol WL. Stam M, et al. Among authors: bartels b. BMJ Open. 2018 Jul 30;8(7):e019932. doi: 10.1136/bmjopen-2017-019932. BMJ Open. 2018. PMID: 30061431 Free PMC article.
The POWER-tool: Recommendations for involving patient representatives in choosing relevant outcome measures during rare disease clinical trial design.
Gaasterland CMW, Jansen-van der Weide MC, Vroom E, Leeson-Beevers K, Kaatee M, Kaczmarek R, Bartels B, van der Pol WL, Roes KCB, van der Lee JH. Gaasterland CMW, et al. Among authors: bartels b. Health Policy. 2018 Dec;122(12):1287-1294. doi: 10.1016/j.healthpol.2018.09.011. Epub 2018 Sep 21. Health Policy. 2018. PMID: 30274934 Free article.
Physical exercise training for type 3 spinal muscular atrophy.
Bartels B, Montes J, van der Pol WL, de Groot JF. Bartels B, et al. Cochrane Database Syst Rev. 2019 Mar 1;3(3):CD012120. doi: 10.1002/14651858.CD012120.pub2. Cochrane Database Syst Rev. 2019. PMID: 30821348 Free PMC article. Review.
Natural course of scoliosis and lifetime risk of scoliosis surgery in spinal muscular atrophy.
Wijngaarde CA, Brink RC, de Kort FAS, Stam M, Otto LAM, Asselman FL, Bartels B, van Eijk RPA, Sombroek J, Cuppen I, Verhoef M, van den Berg LH, Wadman RI, Castelein RM, van der Pol WL. Wijngaarde CA, et al. Among authors: bartels b. Neurology. 2019 Jul 9;93(2):e149-e158. doi: 10.1212/WNL.0000000000007742. Epub 2019 Jun 4. Neurology. 2019. PMID: 31164393
80 results