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The Psychosocial Impact of Fabry Disease on Pediatric Patients.
J Pediatr Genet. 2016 Sep;5(3):141-9. doi: 10.1055/s-0036-1584357. Epub 2016 Jun 13.
J Pediatr Genet. 2016.
PMID: 27617155
Free PMC article.
Health-Related Quality of Life in Patients with MPS II.
Needham M, Packman W, Quinn N, Rappoport M, Aoki C, Bostrom A, Cordova M, Macias S, Morgan C, Packman S.
Needham M, et al.
J Genet Couns. 2015 Aug;24(4):635-44. doi: 10.1007/s10897-014-9791-7. Epub 2014 Nov 14.
J Genet Couns. 2015.
PMID: 25395377
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The family impact of caring for a child with juvenile dermatomyositis.
Kountz-Edwards S, Aoki C, Gannon C, Gomez R, Cordova M, Packman W.
Kountz-Edwards S, et al.
Chronic Illn. 2017 Dec;13(4):262-274. doi: 10.1177/1742395317690034. Epub 2017 Jan 30.
Chronic Illn. 2017.
PMID: 28133992
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