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2018 1
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2022 8
2023 2
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Page 1
Characterizing the Biomedical Data-Sharing Landscape.
Villanueva AG, Cook-Deegan R, Koenig BA, Deverka PA, Versalovic E, McGuire AL, Majumder MA. Villanueva AG, et al. J Law Med Ethics. 2019 Mar;47(1):21-30. doi: 10.1177/1073110519840481. J Law Med Ethics. 2019. PMID: 30994069 Free PMC article. Review.
Genomic Data-Sharing Practices.
Villanueva AG, Cook-Deegan R, Robinson JO, McGuire AL, Majumder MA. Villanueva AG, et al. J Law Med Ethics. 2019 Mar;47(1):31-40. doi: 10.1177/1073110519840482. J Law Med Ethics. 2019. PMID: 30994063 Free PMC article.
GA4GH: International policies and standards for data sharing across genomic research and healthcare.
Rehm HL, Page AJH, Smith L, Adams JB, Alterovitz G, Babb LJ, Barkley MP, Baudis M, Beauvais MJS, Beck T, Beckmann JS, Beltran S, Bernick D, Bernier A, Bonfield JK, Boughtwood TF, Bourque G, Bowers SR, Brookes AJ, Brudno M, Brush MH, Bujold D, Burdett T, Buske OJ, Cabili MN, Cameron DL, Carroll RJ, Casas-Silva E, Chakravarty D, Chaudhari BP, Chen SH, Cherry JM, Chung J, Cline M, Clissold HL, Cook-Deegan RM, Courtot M, Cunningham F, Cupak M, Davies RM, Denisko D, Doerr MJ, Dolman LI, Dove ES, Dursi LJ, Dyke SOM, Eddy JA, Eilbeck K, Ellrott KP, Fairley S, Fakhro KA, Firth HV, Fitzsimons MS, Fiume M, Flicek P, Fore IM, Freeberg MA, Freimuth RR, Fromont LA, Fuerth J, Gaff CL, Gan W, Ghanaim EM, Glazer D, Green RC, Griffith M, Griffith OL, Grossman RL, Groza T, Auvil JMG, Guigó R, Gupta D, Haendel MA, Hamosh A, Hansen DP, Hart RK, Hartley DM, Haussler D, Hendricks-Sturrup RM, Ho CWL, Hobb AE, Hoffman MM, Hofmann OM, Holub P, Hsu JS, Hubaux JP, Hunt SE, Husami A, Jacobsen JO, Jamuar SS, Janes EL, Jeanson F, Jené A, Johns AL, Joly Y, Jones SJM, Kanitz A, Kato K, Keane TM, Kekesi-Lafrance K, Kelleher J, Kerry G, Khor SS, Knoppers BM, Konopko MA, Kosaki K, Kuba M, Lawson J, Leinonen R, Li S… See abstract for full author list ➔ Rehm HL, et al. Cell Genom. 2021 Nov 10;1(2):100029. doi: 10.1016/j.xgen.2021.100029. Cell Genom. 2021. PMID: 35072136 Free PMC article.
What is a Medical Information Commons?
Bollinger JM, Zuk PD, Majumder MA, Versalovic E, Villanueva AG, Hsu RL, McGuire AL, Cook-Deegan R. Bollinger JM, et al. J Law Med Ethics. 2019 Mar;47(1):41-50. doi: 10.1177/1073110519840483. J Law Med Ethics. 2019. PMID: 30994065 Free PMC article.
U.S. Adult Perspectives on Facial Images, DNA, and Other Biometrics.
Katsanis SH, Claes P, Doerr M, Cook-Deegan R, Tenenbaum JD, Evans BJ, Lee MK, Anderton J, Weinberg SM, Wagner JK. Katsanis SH, et al. IEEE Trans Technol Soc. 2022 Mar;3(1):9-15. doi: 10.1109/tts.2021.3120317. Epub 2021 Oct 18. IEEE Trans Technol Soc. 2022. PMID: 35360665 Free PMC article.
Federated learning and Indigenous genomic data sovereignty.
Boscarino N, Cartwright RA, Fox K, Tsosie KS. Boscarino N, et al. Nat Mach Intell. 2022 Nov;4(11):909-911. doi: 10.1038/s42256-022-00551-y. Epub 2022 Nov 15. Nat Mach Intell. 2022. PMID: 36504698 Free PMC article.
Toward better governance of human genomic data.
O'Doherty KC, Shabani M, Dove ES, Bentzen HB, Borry P, Burgess MM, Chalmers D, De Vries J, Eckstein L, Fullerton SM, Juengst E, Kato K, Kaye J, Knoppers BM, Koenig BA, Manson SM, McGrail KM, McGuire AL, Meslin EM, Nicol D, Prainsack B, Terry SF, Thorogood A, Burke W. O'Doherty KC, et al. Nat Genet. 2021 Jan;53(1):2-8. doi: 10.1038/s41588-020-00742-6. Nat Genet. 2021. PMID: 33414545 Free PMC article.
25 results