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Long-Term Follow-Up Cares and Check Initiative: A Program to Advance Long-Term Follow-Up in Newborns Identified with a Disease through Newborn Screening.
Int J Neonatal Screen. 2024 Apr 18;10(2):34. doi: 10.3390/ijns10020034.
Int J Neonatal Screen. 2024.
PMID: 38651399
Free PMC article.
Defining the Minimal Long-Term Follow-Up Data Elements for Newborn Screening.
Kellar-Guenther Y, Barringer L, Raboin K, Nichols G, Chou KYF, Nguyen K, Burke AR, Fawbush S, Meyer JB, Dorsey M, Brower A, Chan K, Lietsch M, Taylor J, Caggana M, Sontag MK.
Kellar-Guenther Y, et al.
Int J Neonatal Screen. 2024 May 15;10(2):37. doi: 10.3390/ijns10020037.
Int J Neonatal Screen. 2024.
PMID: 38804359
Free article.
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Advancing Newborn Screening Long-Term Follow-Up: Integration of Epic-Based Registries, Dashboards, and Efficient Workflows.
Raboin K, Ellis D, Nichols G, Hughes M, Brimacombe M, Rubin K.
Raboin K, et al.
Int J Neonatal Screen. 2024 Mar 25;10(2):27. doi: 10.3390/ijns10020027.
Int J Neonatal Screen. 2024.
PMID: 38651392
Free PMC article.
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