Parental experiences and coping strategies when caring for a child receiving paediatric palliative care: a qualitative study.
Verberne LM, Kars MC, Schouten-van Meeteren AYN, van den Bergh EMM, Bosman DK, Colenbrander DA, Grootenhuis MA, van Delden JJM.
Verberne LM, et al.
Eur J Pediatr. 2019 Jul;178(7):1075-1085. doi: 10.1007/s00431-019-03393-w. Epub 2019 May 19.
Eur J Pediatr. 2019.
PMID: 31104108
Free PMC article.
Prominent reported parental experiences were daily anxiety of child loss, confrontation with loss and related grief, ambiguity towards uncertainty, preservation of a meaningful relationship with their child, tension regarding end-of-life decisions and engagement with profe …
Prominent reported parental experiences were daily anxiety of child loss, confrontation with loss and related grief, ambiguity towards uncer …