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Consent recommendations for research and international data sharing involving persons with dementia.
Thorogood A, Mäki-Petäjä-Leinonen A, Brodaty H, Dalpé G, Gastmans C, Gauthier S, Gove D, Harding R, Knoppers BM, Rossor M, Bobrow M; Global Alliance for Genomics and Health, Ageing and Dementia Task Team. Thorogood A, et al. Among authors: harding r. Alzheimers Dement. 2018 Oct;14(10):1334-1343. doi: 10.1016/j.jalz.2018.05.011. Epub 2018 Jul 2. Alzheimers Dement. 2018. PMID: 30293575 Free article.
Feasibility of a new electronic patient-reported outcome (ePRO) system for an advanced therapy clinical trial in immune-mediated inflammatory disease (PROmics): protocol for a qualitative feasibility study.
Hughes SE, McMullan C, Rowe A, Retzer A, Malpass R, Bathurst C, Davies EH, Frost C, McNamara G, Harding R, Price G, Wilson R, Walker A, Newsome PN, Calvert M. Hughes SE, et al. Among authors: harding r. BMJ Open. 2022 Sep 6;12(9):e063199. doi: 10.1136/bmjopen-2022-063199. BMJ Open. 2022. PMID: 36691123 Free PMC article.
Development and usability testing of an electronic patient-reported outcome (ePRO) solution for patients with inflammatory diseases in an Advanced Therapy Medicinal Product (ATMP) basket trial.
McMullan C, Retzer A, Hughes SE, Aiyegbusi OL, Bathurst C, Boyd A, Coleman J, Davies EH, Denniston AK, Dunster H, Frost C, Harding R, Hunn A, Kyte D, Malpass R, McNamara G, Mitchell S, Mittal S, Newsome PN, Price G, Rowe A, van Reil W, Walker A, Wilson R, Calvert M. McMullan C, et al. Among authors: harding r. J Patient Rep Outcomes. 2023 Oct 9;7(1):98. doi: 10.1186/s41687-023-00634-3. J Patient Rep Outcomes. 2023. PMID: 37812323 Free PMC article.