Novel Data Sharing Agreement to Accelerate Big Data Translational Research Projects in the One Health Sphere

Top Companion Anim Med. 2019 Dec:37:100367. doi: 10.1016/j.tcam.2019.100367. Epub 2019 Oct 1.

Abstract

When conducting translational research, the ability to share data generated by researchers and clinicians working with for-profit companies is essential, particularly in cases that involve "one health" data (i.e., data that could come from human, animal, or environmental sources). The 1DATA Project, a collaboration between Kansas State University and the University of Missouri, has examined and overcome some of the barriers to sharing this information for "big data" projects. This article discusses some of the obstacles we encountered, and the ways those obstacles can be surmounted via a novel form of Master Sharing Agreement. Developed in collaboration with industry partners, it is presented here as a template for expediting future one health work.

Keywords: big data; data analysis; data sharing; legal issues; one health; public-private partnership; translational research.

MeSH terms

  • Animals
  • Big Data*
  • Data Anonymization
  • Health Insurance Portability and Accountability Act
  • Humans
  • Information Dissemination / methods*
  • One Health
  • Translational Research, Biomedical / organization & administration*
  • United States