A Case Study of Community Involvement Influence on Policy Decisions: Victories of a Community-Based Participatory Research Partnership

Int J Environ Res Public Health. 2016 May 20;13(5):515. doi: 10.3390/ijerph13050515.

Abstract

The Buffalo Lupus Project was a community-university partnership that investigated associations between exposure to a local waste site and high rates of lupus and other autoimmune diseases. The partnership's major accomplishment was successful advocacy for containment and clean-up of the site. As a result of community education, the remediation plan suggested by the community was adopted. Additionally, when a local childhood lead poisoning testing program was canceled, community members signed a letter to legislators urging them to replace the funding, which was restored within one week. This demonstrated how coordinated community-based capacity-building efforts can influence health policy.

Keywords: Lupus; Superfund; community-based participatory research; health policy.

MeSH terms

  • Autoimmune Diseases / etiology*
  • Child
  • Community Participation*
  • Community-Based Participatory Research*
  • Health Education
  • Health Policy*
  • Humans
  • Lead Poisoning
  • Refuse Disposal
  • Universities