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Page 1
Drafting a blueprint for the design of a rare disease ecosystem in Slovenia: Identifying salient opportunities and outlining policy recommendations.
J Glob Health. 2021 Aug 31;11:03064. doi: 10.7189/jogh.11.03064. eCollection 2021.
J Glob Health. 2021.
PMID: 34471521
Free PMC article.
Review.
No abstract available.
Psychometric Validation of an Instrument for Measuring Patient Experiences with Outpatient Healthcare.
Sočan G, De Boer D, Murko E, Kralj M, Ropret N, Zaletel M.
Sočan G, et al. Among authors: murko e.
Zdr Varst. 2023 Jun 13;62(3):153-161. doi: 10.2478/sjph-2023-0021. eCollection 2023 Sep.
Zdr Varst. 2023.
PMID: 37327137
Free PMC article.
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Towards a Comprehensive Strategy for the Management of Rare Diseases in Slovenia: Outlining an IT-Enabled Ecosystemic Approach.
Stanimirovic D, Murko E, Battelino T, Groselj U, Zerjav Tansek M.
Stanimirovic D, et al. Among authors: murko e.
Int J Environ Res Public Health. 2021 Nov 25;18(23):12395. doi: 10.3390/ijerph182312395.
Int J Environ Res Public Health. 2021.
PMID: 34886121
Free PMC article.
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Charting Early Developmental Trajectory of a Pilot Rare Disease Registry in Slovenia.
Stanimirovic D, Murko E, Battelino T, Groselj U.
Stanimirovic D, et al. Among authors: murko e.
Stud Health Technol Inform. 2020 Jun 26;272:213-216. doi: 10.3233/SHTI200532.
Stud Health Technol Inform. 2020.
PMID: 32604639
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Development of a pilot rare disease registry: a focus group study of initial steps towards the establishment of a rare disease ecosystem in Slovenia.
Stanimirovic D, Murko E, Battelino T, Groselj U.
Stanimirovic D, et al. Among authors: murko e.
Orphanet J Rare Dis. 2019 Jul 9;14(1):172. doi: 10.1186/s13023-019-1146-x.
Orphanet J Rare Dis. 2019.
PMID: 31288838
Free PMC article.
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