Doing it right: Caring for and protecting patient information for US organ donors and transplant recipients

Eric D Perakslis; Stuart J Knechtle; Brian McCourt; Raymond Lynch; Brianna L Doby

doi:10.1016/j.patter.2023.100734

Doing it right: Caring for and protecting patient information for US organ donors and transplant recipients

Patterns (N Y). 2023 Apr 5;4(4):100734. doi: 10.1016/j.patter.2023.100734. eCollection 2023 Apr 14.

Authors

Eric D Perakslis¹, Stuart J Knechtle², Brian McCourt¹, Raymond Lynch³, Brianna L Doby⁴

Affiliations

¹ Duke Clinical Research Institute, Duke University, Durham, NC 27701, USA.
² Department of Surgery, Duke School of Medicine, Durham, NC 27701, USA.
³ Departments of Surgery and Public Health, Penn State Health Milton S Hershey Medical Center, Hershey, PA, USA.
⁴ Department of Public Health Sciences, New Mexico State University, College of Health Education, and Social Transformation, Las Cruces, NM, USA.

Abstract

In the current US organ transplantation system, there are no regulations defining how organ procurement organizations must manage personal data and protect the privacy of donors and recipients. In response to the recent announcement of a major overhaul of the US transplantation system, we describe a practical approach to improving transplant data quality and protecting the autonomy of patients interacting with the system.

Publication types

News