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Clinical sites of the Undiagnosed Diseases Network: unique contributions to genomic medicine and science.
Schoch K, Esteves C, Bican A, Spillmann R, Cope H, McConkie-Rosell A, Walley N, Fernandez L, Kohler JN, Bonner D, Reuter C, Stong N, Mulvihill JJ, Novacic D, Wolfe L, Abdelbaki A, Toro C, Tifft C, Malicdan M, Gahl W, Liu P, Newman J, Goldstein DB, Hom J, Sampson J, Wheeler MT; Undiagnosed Diseases Network; Cogan J, Bernstein JA, Adams DR, McCray AT, Shashi V. Schoch K, et al. Genet Med. 2021 Feb;23(2):259-271. doi: 10.1038/s41436-020-00984-z. Epub 2020 Oct 23. Genet Med. 2021. PMID: 33093671 Free PMC article.
Understanding Online Registry Facilitators and Barriers Experienced by Black Brain Health Registry Participants: The Community Engaged Digital Alzheimer's Research (CEDAR) Study.
Ashford MT, Zhu D, Bride J, McLean E, Aaronson A, Conti C, Cypress C, Griffin P, Ross R, Duncan T, Deng X, Ulbricht A, Fockler J, Camacho MR, Flenniken D, Truran D, Mackin SR, Hill C, Weiner MW, Byrd D, Turner Ii RW, Cham H, Rivera Mindt M, Nosheny RL. Ashford MT, et al. J Prev Alzheimers Dis. 2023;10(3):551-561. doi: 10.14283/jpad.2023.25. J Prev Alzheimers Dis. 2023. PMID: 37357297 Free PMC article.
Digital culturally tailored marketing for enrolling Latino participants in a web-based registry: Baseline metrics from the Brain Health Registry.
Ashford MT, Camacho MR, Jin C, Eichenbaum J, Ulbricht A, Alaniz R, Van De Mortel L, Sorce J, Aaronson A, Parmar S, Flenniken D, Fockler J, Truran D, Mackin RS, Rivera Mindt M, Morlett-Paredes A, González HM, Mayeda ER, Weiner MW, Nosheny RL. Ashford MT, et al. Alzheimers Dement. 2023 May;19(5):1714-1728. doi: 10.1002/alz.12805. Epub 2022 Oct 4. Alzheimers Dement. 2023. PMID: 36193827 Free PMC article.