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Lessons Learned From Clinical Studies in Centronuclear Myopathies: The Patient Perspective-A Qualitative Study.
Clin Ther. 2024 Apr 25:S0149-2918(24)00073-0. doi: 10.1016/j.clinthera.2024.03.008. Online ahead of print.
Clin Ther. 2024.
PMID: 38670885
Free article.
The experience of clinical study and trial participation in rare diseases: A scoping review of centronuclear myopathy and other neuromuscular disorders.
Stinissen L, Bouma S, Böhm J, van Tienen J, Fischer H, Hughes Z, Lennox A, Ward E, Wood M, Foley AR, Oortwijn W, Jungbluth H, Voermans NC.
Stinissen L, et al.
Neuromuscul Disord. 2024 May;38:1-7. doi: 10.1016/j.nmd.2023.12.014. Epub 2023 Dec 23.
Neuromuscul Disord. 2024.
PMID: 38290938
Free article.
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